Miss Alix Hall

Post Doctoral Researcher

School of Medicine and Public Health (Health Behaviour Sciences)

Career Summary

Qualifications

  • Bachelor of Psychology (Honours), University of Newcastle

Professional Experience

UON Appointment

Title Organisation / Department
Post Doctoral Researcher University of Newcastle
School of Medicine and Public Health
Australia
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Publications

For publications that are currently unpublished or in-press, details are shown in italics.


Journal article (42 outputs)

Year Citation Altmetrics Link
2017 Lim MS, Ariyarajah A, Oldmeadow C, Hall A, Enjeti AK, 'A Systematic Review and Meta-analysis Comparing Anticoagulation versus No Anticoagulation and Shorter versus Longer duration of Anticoagulation for Treatment of Isolated Distal Deep Vein Thrombosis.', Semin Thromb Hemost, 43 836-848 (2017)
DOI 10.1055/s-0037-1604085
Citations Scopus - 1Web of Science - 1
Co-authors Christopher Oldmeadow
2017 Jiao M, Hall AE, Nolte L, Piper A, Lisy K, Jefford M, 'A rapid review of needs assessment tools for post-treatment cancer survivors.', Eur J Cancer Care (Engl), (2017)
DOI 10.1111/ecc.12764
2017 Waller A, Hall A, Sanson-Fisher R, Zdenkowski N, Douglas C, Walsh J, 'Do medical oncology patients and their support persons agree about end of life issues?', Intern Med J, (2017)
DOI 10.1111/imj.13626
Co-authors Amy Waller, Charles Douglas, Rob Sanson-Fisher
2017 Hall A, Lynagh M, Carey M, Sanson-Fisher R, Mansfield E, 'Who are the support persons of haematological cancer survivors and how is their performance perceived?', Psychooncology, (2017)
DOI 10.1002/pon.4449
Co-authors Marita Lynagh, Elise Mansfield, Rob Sanson-Fisher, Mariko Carey
2017 Paul C, Hall A, Oldmeadow C, Lynagh M, Campbell S, Bradstock K, et al., 'Dyadic interdependence of psychosocial outcomes among haematological cancer survivors and their support persons.', Support Care Cancer, (2017)
DOI 10.1007/s00520-017-3751-3
Co-authors Rob Sanson-Fisher, Mariko Carey, Christopher Oldmeadow, Marita Lynagh, Chris Paul
2017 Forshaw K, Hall AE, Boyes AW, Carey ML, Martin J, 'Patients' experiences of preparation for radiation therapy: A qualitative study', Oncology Nursing Forum, 44 E1-E9 (2017) [C1]

Copyright 2016 by the Oncology Nursing Society. Purpose/Objectives: To explore patients' experiences of and preferences for preparation for radiation therapy. Research Approa... [more]

Copyright 2016 by the Oncology Nursing Society. Purpose/Objectives: To explore patients' experiences of and preferences for preparation for radiation therapy. Research Approach: Qualitative study. Participants: 26 individuals who recently received radiation therapy for cancer. Setting: One Australian radiation oncology clinic located within a tertiary referral hospital in New South Wales. Methodologic Approach: Semistructured interviews were conducted and analyzed based on a qualitative descriptive approach and content analysis of the transcribed interviews. Findings: Four main themes related to preparation techniques were identified: (a) psychological preparation (frame of mind, downward comparison, coping mechanisms, and reassurance); (b) information preparation (format, content, and knowledge from patients' own or others' experiences); (c) quality of health care; and (d) social support. Two themes related to outcomes of preparation were identified: feeling psychologically prepared and knowing what to expect. Overall, participants' accounts of preparation for radiation therapy revealed that provision of information was satisfactory. Some participants would have liked more information and support primarily in relation to side effects and the practicalities of what would happen during treatment. Conclusions: The information gained in this study indicates what strategies may best prepare patients for radiation therapy. Interpretation: Providing patients with information that creates a realistic expectation of what radiation therapy involves both before and after treatment seems particularly important in helping them feel prepared.

DOI 10.1188/17.ONF.E1-E9
Co-authors Mariko Carey, Allison Boyes, Jarad Martin
2017 Herrmann A, Sanson-Fisher R, Hall A, Wall L, Zdenkowski N, Waller A, 'A discrete choice experiment to assess cancer patients¿ preferences for when and how to make treatment decisions', Supportive Care in Cancer, 1-6 (2017)

© 2017 Springer-Verlag GmbH Germany Purpose: Cancer patients can be overwhelmed when being confronted with their diagnosis and treatment options. Such information is often provid... [more]

© 2017 Springer-Verlag GmbH Germany Purpose: Cancer patients can be overwhelmed when being confronted with their diagnosis and treatment options. Such information is often provided during one consultation between the patient and treating clinician. In order to achieve optimal cancer care, there may be justification for alternative consultation styles. We assessed, in a sample of adult medical oncology patients, their preferences for (i) attending one 40-min consultation or two 20-min consultations and (ii) receiving written only or both written and online information, when making a cancer treatment decision. Methods: This was a cross-sectional survey using a discrete choice design of 159 adult medical oncology patients presenting for their second or subsequent outpatient consultation. Participants were presented with a set of hypothetical scenarios and asked to indicate their most and least preferred scenario. The scenarios contained a caveat explaining that there would be no difference between the available treatment options in terms of when treatment would be initiated and the impact it would have on patients¿ life expectancy. Results: One hundred forty-seven patients completed the DCE. Of these, 70% (n = 103) preferred being provided with written and online information rather than just written information. This preference was statistically significant (p < 0.01). Fifty-nine percent (n = 86) of patients preferred two 20-min consultations over one 40-min consultation when making a treatment decision. Significantly, more patients preferred two shorter consultations rather than one longer consultation when this was combined with written and online information (p < 0.01). Conclusion: When making a cancer treatment decision, clinicians should consider offering patients written and online information, combined with two shorter consultations.

DOI 10.1007/s00520-017-3944-9
Co-authors Amy Waller, Rob Sanson-Fisher
2016 Bryant J, Boyes AW, Hall A, Girgis A, D'Este C, Sitas F, 'Prevalence and factors related to smoking and smoking cessation 6 months following a cancer diagnosis: a population-based study (vol 10, pg 645, 2016 )', JOURNAL OF CANCER SURVIVORSHIP, 10 1112-1112 (2016)
DOI 10.1007/s11764-016-0561-4
Co-authors Allison Boyes, Catherine Deste
2016 Paul C, Boyes A, Hall A, Bisquera A, Miller A, O Brien L, 'The impact of cancer diagnosis and treatment on employment, income, treatment decisions and financial assistance and their relationship to socioeconomic and disease factors', Supportive Care in Cancer, 24 4739-4746 (2016) [C1]

© 2016, Springer-Verlag Berlin Heidelberg. Purpose: The financial impact of cancer diagnosis and treatment can be considerable to individuals and their households, leading to cha... [more]

© 2016, Springer-Verlag Berlin Heidelberg. Purpose: The financial impact of cancer diagnosis and treatment can be considerable to individuals and their households, leading to changes in treatment decision making. This study aimed to quantify effects on income and employment; describe how cost-related factors influence treatment decision making and need for financial assistance; and to identify patient sociodemographic factors associated with treatment decision making, use of financial assistance and financial effects. Methods: A cross-sectional self-report questionnaire was administered to oncology outpatients from two hospitals in Australia: one regional and one metropolitan. Results: Of 255 participants, 67¿% indicated a change in employment and 63¿% of those reported reduced household income since their diagnosis. Travel (15¿%), loss of income (14¿%) and cost of treatments (11¿%) were commonly cited factors influencing treatment decision making. Seventy-four percent of participants reported that they did not access financial assistance, with more than a third (37¿%) of those being unaware that financial assistance was available. Being currently not employed and more recent diagnosis were associated with a reduced income since diagnosis. After adjusting for employment status and age, patients with private health insurance had higher odds of reporting that financial factors had influenced treatment decision making (OR¿=¿2.5). Conclusion: Unemployment is a major driver of the financial impact of cancer. The costs of treatment may be particularly challenging for those with private health insurance who are more likely to be treated in the private health system where out-of-pocket costs are greater. Improved access to financial assistance is required to better avoid potential inequities.

DOI 10.1007/s00520-016-3323-y
Citations Web of Science - 2
Co-authors Allison Boyes, Chris Paul
2016 Herrmann A, Mansfield E, Hall AE, Sanson-Fisher R, Zdenkowski N, 'Wilfully out of sight? A literature review on the effectiveness of cancer-related decision aids and implementation strategies', BMC Medical Informatics and Decision Making, 16 (2016) [C1]

© 2016 Herrmann et al. Background: There is evidence to suggest that decision aids improve a number of patient outcomes. However, little is known about the progression of researc... [more]

© 2016 Herrmann et al. Background: There is evidence to suggest that decision aids improve a number of patient outcomes. However, little is known about the progression of research effort in this area over time. This literature review examined the volume of research published in 2000, 2007 and 2014 which tested the effectiveness of decision aids in improving cancer patient outcomes, coded by cancer site and decision type being targeted. These numbers were compared with the volume of research examining the effectiveness of strategies to increase the adoption of decision aids by healthcare providers. Methods: A literature review of intervention studies was undertaken. Medline, Embase, PsychInfo and Cochrane Database of Systematic Reviews were searched. The search was limited to human studies published in English, French, or German. Abstracts were assessed against eligibility criteria by one reviewer and a random sample of 20 % checked by a second. Eligible intervention studies in the three time periods were categorised by: i) whether they tested the effectiveness of decision aids, coded by cancer site and decision type, and ii) whether they tested strategies to increase healthcare provider adoption of decision aids. Results: Over the three time points assessed, increasing research effort has been directed towards testing the effectiveness of decision aids in improving patient outcomes (p < 0.0001). The number of studies on decision aids for cancer screening or prevention increased statistically significantly (p < 0.0001) whereas the number of studies on cancer treatment did not (p = 1.00). The majority of studies examined the effectiveness of decision aids for prostate (n = 10), breast (n = 9) or colon cancer (n = 7). Only two studies assessed the effectiveness of implementation strategies to increase healthcare provider adoption of decision aids. Conclusions: While the number of studies testing the effectiveness of decision aids has increased, the majority of research has focused on screening and prevention decision aids for only a few cancer sites. This neglects a number of cancer populations, as well as other areas of cancer care such as treatment decisions. Also, given the apparent effectiveness of decision aids, more effort needs to be made to implement this evidence into meaningful benefits for patients.

DOI 10.1186/s12911-016-0273-8
Citations Scopus - 3Web of Science - 3
Co-authors Elise Mansfield, Rob Sanson-Fisher
2016 Hall AE, Paul C, Bryant J, Lynagh MC, Rowlings P, Enjeti A, Small H, 'To adhere or not to adhere: Rates and reasons of medication adherence in hematological cancer patients', CRITICAL REVIEWS IN ONCOLOGY HEMATOLOGY, 97 247-262 (2016) [C1]
DOI 10.1016/j.critrevonc.2015.08.025
Citations Web of Science - 4
Co-authors Marita Lynagh, Chris Paul
2016 Bryant J, Boyes AW, Hall A, Girgis A, D Este C, Sitas F, 'Prevalence and factors related to smoking and smoking cessation 6¿months following a cancer diagnosis: a population-based study', Journal of Cancer Survivorship, 10 645-653 (2016) [C1]

© 2015, Springer Science+Business Media New York. Purpose: Limited research has examined smoking amongst recent cancer survivors or the relative contribution of factors on smokin... [more]

© 2015, Springer Science+Business Media New York. Purpose: Limited research has examined smoking amongst recent cancer survivors or the relative contribution of factors on smoking behaviour. This study aimed to describe amongst recent Australian cancer survivors (i) prevalence of smoking by cancer type, (ii) characteristics associated with continued smoking following diagnosis, (iii) intention to quit among those who continue to smoke and (iv) characteristics associated with quitting following diagnosis. Method: Cross-sectional data were analysed from 1299 cancer survivors diagnosed with their first primary cancer recruited from two Australian cancer registries in Australia between 2006 and 2008. Results: Of participants, 8.6¿% reported current smoking. Participants who were younger and single or widowed reported higher odds of current smoking. Participants who had a certificate/diploma or tertiary education reported lower odds of smoking. Among current smokers, 53¿% intended to quit in the future. Lung cancer survivors reported more than four times the odds of quitting smoking since diagnosis compared to other cancer types. Conclusion: Of recent Australian cancer survivors, 14¿% report continued smoking. Implications for Cancer Survivors: Smoking following a cancer diagnosis is associated with increased risk of mortality and further morbidity. There is a need to target cessation efforts towards survivors who are younger, without a partner and with a low level of education.

DOI 10.1007/s11764-015-0510-7
Citations Scopus - 3Web of Science - 3
Co-authors Catherine Deste, Allison Boyes
2016 Hall AE, Sanson-Fisher RW, Carey ML, Paul C, Williamson A, Bradstock K, Campbell HS, 'Prevalence and associates of psychological distress in haematological cancer survivors', Supportive Care in Cancer, 24 4413-4422 (2016) [C1]

© 2016, Springer-Verlag Berlin Heidelberg. Purpose: To explore outcomes of psychological distress, including anxiety, depression and stress, amongst adult haematological cancer s... [more]

© 2016, Springer-Verlag Berlin Heidelberg. Purpose: To explore outcomes of psychological distress, including anxiety, depression and stress, amongst adult haematological cancer survivors, with a specific focus on potential differences between rural and urban survivors. Methods: One thousand four hundred fourteen urban and rural survivors were recruited from five Australian population-based cancer registries and completed a self-report pen-and-paper survey on their well-being, including the Depression Anxiety and Stress Scale 21-item version. Results: A quarter of survivors were identified as reporting above normal levels of anxiety and depression, respectively, and almost one fifth (17¿%) reported above normal levels of stress. There were no statistically significant differences in the percentage of rural and urban survivors reporting above normal levels of anxiety, depression, or stress. Survivors who had experienced financial burden due to their cancer or were of middle age had higher odds of reporting multiple domains of psychological distress, compared to their counterparts. Conclusions: Haematological cancer survivors diagnosed during middle age or who experience increased financial burden as a result of their diagnosis may require additional support and care with regards to psychological distress.

DOI 10.1007/s00520-016-3282-3
Citations Scopus - 6Web of Science - 6
Co-authors Mariko Carey, Rob Sanson-Fisher, Chris Paul
2016 Fradgley EA, Bryant J, Paul CL, Hall AE, Sanson-Fisher RW, Oldmeadow C, 'Cross-sectional data that explore the relationship between outpatients' quality of life and preferences for quality improvement in oncology settings', Journal of Oncology Practice, 12 e746-e754 (2016) [C1]

Copyright © 2016 by American Society of Clinical Oncology. Purpose This cross-sectional study assessed the association between oncology outpatients&apos; quality improvement pref... [more]

Copyright © 2016 by American Society of Clinical Oncology. Purpose This cross-sectional study assessed the association between oncology outpatients' quality improvement preferences and health-related quality of life (HRQoL). Implementation of specific initiatives preferred by patients with lower HRQoL may be a strategic approach to enhancing care for potentially vulnerable patients. Methods English-speaking adults were recruited from five outpatient chemotherapy clinics located in New South Wales, Australia. Using touch screen devices, participants selected up to 25 initiatives that would improve their experiences and completed the Functional Assessment of Cancer Therapy-General (FACT-G) survey. The logistic odds of selecting an initiative according to FACT-G scores were calculated to determine whether preferences were associated with HRQoL after controlling for potential confounders. Results Of the 411 eligible outpatients approached to participate, 263 (64%) completed surveys. Commonly selected initiatives were up-to-date information on treatment and condition progress (19.8%), access to or information on financial assistance (18.3%), and reduced clinic wait times (17.5%). For those with relatively lower FACT-G scores, the adjusted odds of selecting five initiatives illustrated an increasing trend: convenient appointment scheduling systems (+23% [P =.002]), reduced wait times (+15% [P =.01] ), information on medical emergencies (+14% [P =.04]), access to or information on financial assistance (+15% [P =.009] ), help to maintain daily living activities (+18% [P =.007]). Conclusion Two areas of improvement were commonly selected: easily accessible health services and information and support for self-management. Although the results suggest an association between a few quality improvement preferences and HRQoL, a wider spectrum of patient characteristics must be considered when targeting quality improvement to patient subgroups.

DOI 10.1200/JOP.2016.011023
Co-authors Rob Sanson-Fisher, Christopher Oldmeadow, Elizabeth Fradgley, Chris Paul
2016 Hall A, Lynagh M, Tzelepis F, Paul C, Bryant J, 'How can we help haematological cancer survivors cope with the changes they experience as a result of their cancer?', Ann Hematol, 95 2065-2076 (2016) [C1]
DOI 10.1007/s00277-016-2806-8
Co-authors Flora Tzelepis, Chris Paul, Marita Lynagh
2016 Bryant J, Mansfield E, Hall A, Waller A, Boyes A, Jayakody A, et al., 'The psychosocial outcomes of individuals with hematological cancers: Are we doing enough high quality research, and what is it telling us?', Critical Reviews in Oncology/Hematology, 101 21-31 (2016) [C1]

© 2016 Elsevier Ireland Ltd. This systematic review assessed the quantity and quality of research examining the psychosocial outcomes among hematological cancer patients. Studies... [more]

© 2016 Elsevier Ireland Ltd. This systematic review assessed the quantity and quality of research examining the psychosocial outcomes among hematological cancer patients. Studies were categorised as either measurement, descriptive or intervention. Intervention studies were further assessed according to Effective Practice and Organisation of Care (EPOC) methodological criteria. A total of 261 eligible papers were identified. The number of publications increased by 8.8% each year (95% CI = 7.5-10.2%; p < 0.0001). The majority of studies were descriptive (n = 232; 89%), with few measurement (n = 8; 3%) and intervention (n = 21; 8%) studies identified. Ten intervention studies met EPOC design criteria, however only two interventions, one targeted at individuals with Hodgkin's or Non-Hodgkin's lymphoma and one targeted at individuals with leukaemia, lymphoma or myelomatosis were successful in improving patients' psychosocial outcomes. Despite an increasing volume of research examining psychosocial outcomes of hematological cancer patients, there is a need for robust measurement and methodologically rigorous intervention research in this area.

DOI 10.1016/j.critrevonc.2016.02.016
Co-authors Amy Waller, Rob Sanson-Fisher, Allison Boyes, Elise Mansfield
2016 Forshaw KL, Carey ML, Hall AE, Boyes AW, Sanson-Fisher R, 'Preparing patients for medical interventions: A systematic review of the psychometric qualities of published instruments', Patient Education and Counseling, 99 960-973 (2016) [C1]

© 2015 Elsevier Ireland Ltd. Objective: Preparing patients for medical interventions improves patient outcomes and is an ethical and legal imperative. This review examines the ch... [more]

© 2015 Elsevier Ireland Ltd. Objective: Preparing patients for medical interventions improves patient outcomes and is an ethical and legal imperative. This review examines the characteristics and psychometric properties of published instruments which assess patients' preparation for medical interventions. Methods: Medline, CINAHL, EMBASE and PsycINFO electronic databases were searched from the date of their inception to November 2015. Data-based publications describing the development or validation of a self-report instrument designed to assess the quality of adult patients' perceived preparation for a medical intervention were included. Results: Nine publications described the development or validation of seven instruments which met inclusion criteria. The psychometric qualities of the instruments varied. None met all of the accepted criteria for psychometric rigour. Although the Satisfaction with Cancer Information Profile met the highest number (n = 5) of the defined psychometric properties, the study sample size was less than 100. Overall, content validity of the included instruments was the most frequently assessed criteria. Conclusion: Few instruments have been specifically developed to assess patients' self-reported preparation for medical interventions. Of the available instruments, none demonstrated adequate rigour across essential psychometric properties. Practice Implications: The need to develop instruments examining patient preparation for medical interventions is apparent given the limitations of the instruments reviewed.

DOI 10.1016/j.pec.2015.12.008
Co-authors Rob Sanson-Fisher, Mariko Carey, Allison Boyes
2015 Yoong SL, Hall A, Williams CM, Skelton E, Oldmeadow C, Wiggers J, et al., 'Alignment of systematic reviews published in the Cochrane database of systematic reviews and the database of abstracts and reviews of effectiveness with global burden-of-disease data: A bibliographic analysis', Journal of Epidemiology and Community Health, 69 708-714 (2015) [C1]

Background: Systematic reviews of high-quality evidence are used to inform policy and practice. To improve community health, the production of such reviews should align with burde... [more]

Background: Systematic reviews of high-quality evidence are used to inform policy and practice. To improve community health, the production of such reviews should align with burden of disease. This study aims to assess if the volume of research output from systematic reviews proportionally aligns with burden of disease assessed using percentages of mortality and disability-adjusted life years (DALYs). Methods: A cross-sectional audit of reviews published between January 2012 and August 2013 in the Cochrane Database of Systematic Reviews (CDSR) and Database of Abstracts of Reviews of Effects (DARE) was undertaken. Percentages of mortality and DALYs were obtained from the 2010 Global Burden of Disease study. Standardised residual differences (SRD) based on percentages of mortality and DALYs were calculated, where conditions with SRD of more than or less than three were considered overstudied or understudied, respectively. Results: 1029 reviews from CDSR and 1928 reviews from DARE were examined. There was a significant correlation between percentage DALYs and systematic reviews published in CDSR and DARE databases (CDSR: r=0.68, p=0.001; DARE: r=0.60, p < 0.001). There was no significant correlation between percentage mortality and number of systematic reviews published in either database (CDSR: r=0.34, p=0.14; DARE: r=0.22, p=0.34). Relative to percentage of mortality, mental and behavioural disorders, musculoskeletal conditions and other non-communicable diseases were overstudied. Maternal disorders were overstudied relative to percentages of mortality and DALYs in CDSR. Conclusions: The focus of systematic reviews is moderately correlated with DALYs. A number of conditions may be overstudied relative to percentage of mortality particularly in the context of health and medical reviews.

DOI 10.1136/jech-2014-205389
Citations Scopus - 4Web of Science - 3
Co-authors Luke Wolfenden, John Wiggers, Serene Yoong, Christopher Oldmeadow, Christopher M Williams
2015 Tzelepis F, Sanson-Fisher RW, Hall AE, Carey ML, Paul CL, Clinton-Mcharg T, 'Development and psychometric evaluation of the Quality of Patient-Centered Cancer Care measure with hematological cancer survivors', Cancer, 121 2383-2392 (2015) [C1]

© 2015 American Cancer Society. BACKGROUND The Institute of Medicine (IOM) recommended 6 objectives for achieving patient-centered care. However, most patient-reported outcome me... [more]

© 2015 American Cancer Society. BACKGROUND The Institute of Medicine (IOM) recommended 6 objectives for achieving patient-centered care. However, most patient-reported outcome measures developed with cancer populations fail to address all 6 patient-centeredness dimensions. The Quality of Patient-Centered Cancer Care (QPCCC) measure was developed on the basis of IOM recommendations, and the measure's validity, reliability, and floor and ceiling effects were examined. METHODS The development of the QPCCC measure included interviews with hematological cancer survivors and feedback from hematologists and cancer patients. To evaluate the measure's psychometric properties, hematological cancer survivors were identified via 2 cancer registries and were mailed the QPCCC measure. To examine test-retest reliability, a second QPCCC measure was mailed to survivors 7 to 14 days after they had returned the first measure. RESULTS Overall, 545 hematological cancer survivors completed the 48-item QPCCC measure. Exploratory factor analysis revealed a 10-factor structure with factor loadings > 0.40. The subscales were labeled Treatment Delivery, Treatment Decision Making, Coordinated and Integrated Care, Emotional Support, Timely Care, Follow-Up Care, Respectful Communication, Patient Preferences and Values, Cancer Information, and Equitable Care. The QPCCC measure demonstrated acceptable internal consistency for all subscales (Cronbach's a=.73-.94). When test-retest reliability was assessed, 4 items demonstrated substantial agreement (¿ > 0.60), whereas 40 items showed moderate agreement (¿=0.41-0.60). Ceiling effects were present for 8 subscales. CONCLUSIONS The QPCCC measure has acceptable face and content validity, construct validity, and internal consistency. However, the measure's discriminant validity and test-retest reliability could be improved. The QPCCC measure could be used to improve patient-centered cancer care. Cancer 2015;121:2383-2392.

DOI 10.1002/cncr.29384
Citations Scopus - 5Web of Science - 4
Co-authors Mariko Carey, Chris Paul, Flora Tzelepis, Tara Clinton-Mcharg, Rob Sanson-Fisher
2015 Hall AE, Sanson-Fisher RW, Lynagh MC, Tzelepis F, D'Este C, 'What do haematological cancer survivors want help with? A cross-sectional investigation of unmet supportive care needs', BMC research notes, 8 221 (2015) [C1]

BACKGROUND: This study aimed to identify the most prevalent unmet needs of haematological cancer survivors. METHODS: Haematological cancer survivors aged 18-80 years at time of re... [more]

BACKGROUND: This study aimed to identify the most prevalent unmet needs of haematological cancer survivors. METHODS: Haematological cancer survivors aged 18-80 years at time of recruitment were selected from four Australian state cancer registries. Survivors completed the Survivor Unmet Needs Survey. The most frequently reported "high/very high" unmet needs items were identified, as well as characteristics associated with the three most prevalent "high/very high" unmet needs reported by haematological cancer survivors. RESULTS: A total of 715 eligible survivors returned a completed survey. "Dealing with feeling tired" (17%), was the most frequently endorsed "high/very high" unmet need. Seven out of the ten most frequently endorsed unmet needs related to emotional health. Higher levels of psychological distress (e.g., anxiety, depression and stress) and indicators of financial burden as a result of cancer (e.g., having used up savings and trouble meeting day-to-day expenses due to cancer) were consistently identified as characteristics associated with the three most prevalent "high/very high" unmet needs. CONCLUSIONS: A minority of haematological cancer survivors endorsed a "high/very high" unmet need on individual items. Additional emotional support may be needed by a minority of survivors. Survivors reporting high levels of psychological distress or those who experience increased financial burden as a result of their cancer diagnosis may be at risk of experiencing the most prevalent "high/very high" unmet needs identified by this study.

DOI 10.1186/s13104-015-1188-7
Citations Scopus - 6
Co-authors Catherine Deste, Flora Tzelepis, Marita Lynagh, Rob Sanson-Fisher
2015 Tzelepis F, Sanson-Fisher RW, Hall AE, Carey ML, Paul CL, Clinton-Mcharg T, 'The quality of patient-centred care: Haematological cancer survivors' perceptions', Psycho-Oncology, 24 796-803 (2015) [C1]

Copyright © 2014 John Wiley &amp; Sons, Ltd. Copyright © 2014 John Wiley &amp; Sons, Ltd. Objective Patient-reported outcome measures (PROMs) that assess the quality of pati... [more]

Copyright © 2014 John Wiley & Sons, Ltd. Copyright © 2014 John Wiley & Sons, Ltd. Objective Patient-reported outcome measures (PROMs) that assess the quality of patient-centred cancer care have failed to measure all six patient-centredness dimensions endorsed by the Institute of Medicine (IOM). This study is the first to use the Quality of Patient-Centered Cancer Care (QPCCC) measure that covers all six IOM patient-centredness dimensions to examine haematological cancer survivors' perceptions of care and characteristics associated with perceived quality of care. Methods Haematological cancer survivors diagnosed in the last 6 years and aged 18-80 years were recruited from two Australian state population-based cancer registries. Survivors were mailed the 48-item QPCCC measure. Results Overall, 545 haematological cancer survivors completed the measure. Areas of care most commonly identified as delivered were hospital staff showing respect to survivors (93%) and making sure the correct treatment was received (93%). Aspects of care most frequently nominated as not delivered were hospital staff helping family and friends (34%) or the survivor (32%) to find other people with similar experiences to talk to. Characteristics associated with survivors perceiving higher quality care was delivered included being employed, having private health insurance, being younger, a Non-Hodgkin lymphoma diagnosis and more recent diagnosis. Being depressed or stressed was associated with perceived lower quality of care. Conclusions Provision of peer support programs that allow haematological cancer survivors and families and friends to talk to others in similar situations could be improved. Using PROMs to identify areas where cancer survivors perceive improvements are needed is essential to quality improvement efforts.

DOI 10.1002/pon.3728
Citations Scopus - 3Web of Science - 2
Co-authors Flora Tzelepis, Mariko Carey, Tara Clinton-Mcharg, Rob Sanson-Fisher, Chris Paul
2015 Smith AL, Bascuñana C, Hall A, Salman A, Andrei AZ, Volenik A, et al., 'Establishing a clinic-based pancreatic cancer and periampullary tumour research registry in Quebec', Current Oncology, 22 113-121 (2015)

© 2015 Multimed Inc. Background Enrolling patients in studies of pancreatic ductal adenocarcinoma (PDAC) is challenging because of the high fatality of the disease. We hypothesiz... [more]

© 2015 Multimed Inc. Background Enrolling patients in studies of pancreatic ductal adenocarcinoma (PDAC) is challenging because of the high fatality of the disease. We hypothesized that a prospective clinic-based study with rapid ascertainment would result in high participation rates. Using that strategy, we established the Quebec Pancreas Cancer Study (QPCS) to investigate the genetics and causes of PDAC and other periampullary tumours (PATS) that are also rare and underrepresented in research studies. Methods Patients diagnosed with PDAC or PAT were introduced to the study at their initial clinical encounter, with a strategy to enrol participants within 2 weeks of diagnosis. Patient self-referrals and referrals of unaffected individuals with an increased risk of PDAC were also accepted. Family histories, epidemiologic and clinical data, and biospecimens were collected. Additional relatives were enrolled in families at increased genetic risk. Results The first 346 completed referrals led to 306 probands being enrolled, including 190 probands affected with PDAC, who represent the population focus of the QPCS. Participation rates were 88.4% for all referrals and 89.2% for PDAC referrals. Family history, epidemiologic and clinical data, and biospecimens were ascertained from 91.9%, 54.6%, and 97.5% respectively of patients with PDAC. Although demographics and trends in risk factors in our patients were consistent with published statistics for patients with PDAC, the QPCS is enriched for families with French-Canadian ancestry (37.4%), a population with recurrent germline mutations in hereditary diseases. Conclusions Using rapid ascertainment, a PDAC and PAT research registry with high participation rates can be established. The QPCS is a valuable research resource and its enrichment with patients of French-Canadian ancestry provides a unique opportunity for studies of heredity in these diseases.

DOI 10.3747/co.22.2300
Citations Scopus - 4
2015 Sang NM, Hall A, Huong TTT, Giang LM, Hinh ND, 'Validity and reliability of the Vietnamese Physician Professional Values Scale', Global Public Health, 10 S131-S148 (2015) [C1]

© 2014 Taylor &amp; Francis. Physician values influence a physician¿s clinical practice and level of medical professionalism. Currently, there is no psychometrically valid sca... [more]

© 2014 Taylor & Francis. Physician values influence a physician¿s clinical practice and level of medical professionalism. Currently, there is no psychometrically valid scale to assess physician values in Vietnam. This study assessed the initial validity and reliability of the Vietnamese Physician Professional Values Scale (VPPVS). Hartung¿s original Physician Values in Practice Scale (PVIPS) was translated from English into Vietnamese and adapted to reflect the cultural values of Vietnamese physicians. A sample of clinical experts reviewed the VPPVS to ensure face and content validity of the scale, resulting in a draft 37-item measure. A cross-sectional survey of 1086 physicians from Hanoi, Hue and Ho Chi Minh City completed a self-report survey, which included the draft of the VPPVS. Exploratory Factor Analysis was used to assess construct validity, resulting in 35 items assessing physician¿s professional values across five main factors: lifestyle, professionalism, prestige, management and finance. The final five-factor scale illustrated acceptable internal consistency, with Cronbach¿s alpha coefficients ranging from 0.73 to 0.86 and all item-total correlations > 0.2. Limited floor or ceiling effects were found. This study supports the application of the VPPVS to measure medical professional values of Vietnamese physicians. Future studies should further assess the psychometric properties of the VPPVS using large samples.

DOI 10.1080/17441692.2014.981830
Citations Scopus - 2Web of Science - 2
2015 Lynagh MC, Clinton-McHarg T, Hall A, Sanson-Fisher R, Stevenson W, Tiley C, Bisquera A, 'Are Australian clinicians monitoring medication adherence in hematological cancer survivors? Two cross-sectional studies.', Experimental Hematology & Oncology, 4 1-8 (2015) [C1]
DOI 10.1186/s40164-015-0011-4
Citations Scopus - 2Web of Science - 1
Co-authors Tara Clinton-Mcharg, Marita Lynagh, Rob Sanson-Fisher
2014 Bryant J, Passey ME, Hall AE, Sanson-Fisher RW, 'A systematic review of the quality of reporting in published smoking cessation trials for pregnant women: An explanation for the evidence-practice gap?', Implementation Science, 9 (2014) [C1]

© 2014 Bryant et al.; licensee BioMed Central. Background: To facilitate translation of evidence into clinical practice, it is critical that clear, specific, and detailed informa... [more]

© 2014 Bryant et al.; licensee BioMed Central. Background: To facilitate translation of evidence into clinical practice, it is critical that clear, specific, and detailed information about interventions is provided in publications to promote replication, appropriate aggregation in meta-analysis, and implementation. This study examined whether twenty elements of interventions deemed essential for such translational application were reported in sufficient detail in smoking cessation trials with pregnant women. Methods: Searches of electronic databases using MeSH terms and keywords identified peer-reviewed English language studies published between 2001 and 2012. Eligible studies reported a smoking cessation intervention targeted at pregnant women and met Cochrane's Effective Practice and Organization of Care group study design criteria. Each intervention arm of eligible studies was assessed against the developed twenty criteria. Results: Thirty relevant studies reported the findings of 45 intervention arms. The mode of delivery of the intervention was reported in 100% of intervention arms. Other well-reported criteria included reporting of the provider who delivered the inte rvention (96%), sample characteristics (80%), and the intervention setting (80%). Criteria not reported adequately included care provided to women who relapse (96% not reported), details about training given to providers (77% not reported), and the method of quit advice advised (76% not reported). No studies reported 100% of relevant criteria. Conclusions: Current standards of reporting of intervention content and implementation are suboptimal. The use of smoking cessation specific checklists for reporting of trials, standard reporting using behaviour change taxonomies, and the publication of protocols as supplements should be considered as ways of improving the specificity of reporting.

DOI 10.1186/s13012-014-0094-z
Citations Scopus - 8Web of Science - 7
Co-authors Rob Sanson-Fisher
2014 Campbell HS, Hall AE, Sanson-Fisher RW, Barker D, Turner D, Taylor-Brown J, 'Development and validation of the Short-Form Survivor Unmet Needs Survey (SF-SUNS)', Supportive Care in Cancer, 22 1071-1079 (2014) [C1]

Purpose: The Survivor Unmet Needs Survey (SUNS) is one of the only unmet needs measures that was developed and evaluated utilising a population-based sample of cancer survivors. A... [more]

Purpose: The Survivor Unmet Needs Survey (SUNS) is one of the only unmet needs measures that was developed and evaluated utilising a population-based sample of cancer survivors. At 89 items, the current scale is quite burdensome. The current study aimed to develop a valid and reliable short version of this survey. Methods: A heterogeneous sample of 1,589 cancer survivors, aged 19 years or over at diagnosis, diagnosed with a histologically confirmed cancer in the previous 12 to 60 months, completed the SUNS. Using these data, we employed a combined theoretical and statistical method of reducing the number of items in the SUNS. The shortened survey was examined for construct validity, internal consistency, discriminant validity and floor and ceiling effects. Results: Fifty-nine items were removed. Construct validity closely reflected the original structure of the SUNS. However, all items from the Emotional health and Relationships domains loaded onto one factor. Cronbach's alpha for the final four domains were 0.85 or above, demonstrating strong internal consistency. Intra-class correlations of the three domains from the original survey (Financial concerns, Information and Access and continuity of care) and shortened survey were high ( > 0.9). Discriminant validity illustrated the short-form SUNS' ability to discriminate between those who had recently received treatment and those who had not. Conclusions: This study describes the development and psychometric evaluation of the short-form SUNS (SF-SUNS). Future studies should confirm the test-retest reliability and predictive validity of the SF-SUNS utilising large, independent, population-based samples of cancer survivors. © 2013 Springer-Verlag.

DOI 10.1007/s00520-013-2061-7
Citations Scopus - 6Web of Science - 7
Co-authors Rob Sanson-Fisher
2014 Hall A, D Este C, Tzelepis F, Lynagh M, Sanson-Fisher R, 'Factors associated with haematological cancer survivors experiencing a high level of unmet need across multiple items of supportive care: a cross-sectional survey study', Supportive Care in Cancer, 22 2899-2909 (2014) [C1]

© 2014, Springer-Verlag Berlin Heidelberg. Purpose: This study aimed to identify subgroups of haematological cancer survivors who report a ¿high/very high¿ level of unmet need ... [more]

© 2014, Springer-Verlag Berlin Heidelberg. Purpose: This study aimed to identify subgroups of haematological cancer survivors who report a ¿high/very high¿ level of unmet need on multiple (=7) items of supportive care. Results: Of the 696 survivors included in this study, 175 (n = 25¿%) reported a ¿high/very high¿ level of unmet need on seven or more items of the SUNS. Survivors who: had relocated due to their cancer (OR: 2.04; 95¿% CI: 1.18, 3.52), had difficulty paying bills (OR: 2.42; 95¿% CI: 1.34, 4.38), had used up their savings as a result of cancer (OR: 1.90; 95¿% CI: 1.06, 3.40), and were classified as having above normal symptoms of depression (OR: 3.65; 95¿% CI: 2.17, 6.15) and stress (OR: 5.94; 95¿% CI: 3.22, 10.95) on the Depression Anxiety and Stress Scale-21 (DASS-21) had statistically significantly higher odds of reporting seven or more ¿high/very high¿ unmet needs. Methods: Haematological cancer survivors, aged 18 to 80¿years at recruitment were selected from four Australian state-based cancer registries. Eligible survivors were sent a survey containing the Survivor Unmet Needs Survey (SUNS). Logistic regression analysis was used to identify characteristics associated with haematological cancer survivors reporting a ¿high/very high¿ level of unmet need on =7 items of the SUNS. Conclusions: Additional and intensive supportive care may be needed for this subgroup of haematological cancer survivors experiencing multiple ¿high/very high¿ unmet needs. Assistance with accessing relevant financial support and highly accessible services that provide emotional and information support, such as online and telephone peer support programs may prove beneficial in addressing the needs of this subgroup of haematological cancer survivors. It is suggested that future, methodologically rigorous intervention studies assess such strategies.

DOI 10.1007/s00520-014-2264-6
Citations Scopus - 12Web of Science - 11
Co-authors Flora Tzelepis, Rob Sanson-Fisher, Marita Lynagh, Catherine Deste
2014 Campbell SH, Carey M, Sanson-Fisher R, Barker D, Turner D, Taylor-Brown J, Hall A, 'Measuring the unmet supportive care needs of cancer support persons: The development of the Support Person's Unmet Needs Survey - short form', European Journal of Cancer Care, 23 255-262 (2014) [C1]

Few rigorous measures of unmet needs have been developed for cancer support persons. This study describes the development of a short version of the Support Person&apos;s Unmet Nee... [more]

Few rigorous measures of unmet needs have been developed for cancer support persons. This study describes the development of a short version of the Support Person's Unmet Needs Survey (SPUNS). Cancer survivors [n = 1589, 612 (52%) men, mean age of 62.5 years, SD 11.5] 1-5 years post diagnosis and recruited through three Canadian population-based cancer registries were asked to pass a survey package on to their principal support person. Surveys were returned by 1183 support persons. The survey included the long form of the SPUNS, which contains 78 items. Fifty-two items were deleted using a combination of expert opinion and statistical criteria. Analysis of the remaining items revealed a five-factor structure. The original factors were retained with the exception of a merging of the personal and emotional needs subscales. Cronbach's alpha co-efficients for all subscales were =0.87, and intraclass correlation of domain scores of the short and long versions of the SPUNS were high. The SPUNS short form was able to discriminate between support persons of survivors who had (n = 147), and those who had not received treatment in the past month (n = 969). At just 26 items, it is likely to have strong clinical and research applicability. © 2013 John Wiley & Sons Ltd.

DOI 10.1111/ecc.12138
Citations Scopus - 3Web of Science - 3
Co-authors Mariko Carey, Rob Sanson-Fisher
2014 Hall A, D'Este C, Tzelepis F, Sanson-Fisher R, Lynagh M, 'The Survivor Unmet Needs Survey (SUNS) for haematological cancer survivors: a cross-sectional study assessing the relevance and psychometric properties', BMC HEALTH SERVICES RESEARCH, 14 (2014) [C1]
DOI 10.1186/1472-6963-14-211
Citations Scopus - 6Web of Science - 4
Co-authors Flora Tzelepis, Catherine Deste, Rob Sanson-Fisher, Marita Lynagh
2014 Hall A, Sanson-Fisher R, Lynagh M, Tzelepis F, D'Este C, 'A COMPARISON OF THE UNMET NEEDS OF YOUNGER AND OLDER ADULT HAEMATOLOGICAL CANCER SURVIVORS', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, 10 162-163 (2014) [E3]
Co-authors Flora Tzelepis, Rob Sanson-Fisher, Marita Lynagh, Catherine Deste
2013 Passey ME, Bryant J, Hall AE, Sanson-Fisher RW, 'How will we close the gap in smoking rates for pregnant Indigenous women?', MEDICAL JOURNAL OF AUSTRALIA, 199 39-41 (2013) [C1]
DOI 10.5694/mja12.11848
Citations Scopus - 16Web of Science - 16
Co-authors Rob Sanson-Fisher
2013 Paul CL, Hall AE, Carey ML, Cameron EC, Clinton-McHarg T, 'Access to Care and Impacts of Cancer on Daily Life: Do They Differ for Metropolitan Versus Regional Hematological Cancer Survivors?', Journal of Rural Health, 29 (2013) [C1]
DOI 10.1111/jrh.12020
Citations Scopus - 11Web of Science - 10
Co-authors Chris Paul, Mariko Carey, Tara Clinton-Mcharg
2013 Hall AE, Sanson-Fisher RW, Lynagh MC, Threlfall T, D'Este CA, 'Format and readability of an enhanced invitation letter did not affect participation rates in a cancer registry-based study: a randomized controlled trial', JOURNAL OF CLINICAL EPIDEMIOLOGY, 66 85-94 (2013) [C1]
DOI 10.1016/j.jclinepi.2012.07.016
Citations Scopus - 14Web of Science - 13
Co-authors Catherine Deste, Marita Lynagh, Rob Sanson-Fisher
2013 Hall A, Lynagh M, Bryant J, Sanson-Fisher R, 'Supportive care needs of hematological cancer survivors: A critical review of the literature', Critical Reviews in Oncology/Hematology, 88 102-116 (2013) [C1]
DOI 10.1016/j.critrevonc.2013.03.008
Citations Scopus - 16Web of Science - 14
Co-authors Rob Sanson-Fisher, Marita Lynagh
2013 Hall A, Campbell HS, Sanson-Fisher R, Lynagh M, D'Este C, Burkhalter R, Carey M, 'Unmet needs of Australian and Canadian haematological cancer survivors: a cross-sectional international comparative study', PSYCHO-ONCOLOGY, 22 2032-2038 (2013) [C1]
DOI 10.1002/pon.3247
Citations Scopus - 22Web of Science - 19
Co-authors Mariko Carey, Rob Sanson-Fisher, Marita Lynagh, Catherine Deste
2012 Hall AE, Boyes AW, Bowman JA, Walsh RA, James EL, Girgis A, 'Young adult cancer survivors' psychosocial well-being: A cross-sectional study assessing quality of life, unmet needs, and health behaviors', Supportive Care in Cancer, 20 1333-1341 (2012) [C1]
DOI 10.1007/s00520-011-1221-x
Citations Scopus - 38Web of Science - 33
Co-authors Allison Boyes, Jenny Bowman, Erica James
2012 Mackenzie LJ, Carey ML, Sanson-Fisher RW, D'Este CA, Hall AE, 'Cancer patients' willingness to answer survey questions about life expectancy', Supportive Care in Cancer, 20 3335-3341 (2012) [C1]
DOI 10.1007/s00520-012-1477-9
Citations Scopus - 3Web of Science - 3
Co-authors Lisa Mackenzie, Catherine Deste, Rob Sanson-Fisher, Mariko Carey
2012 Carey ML, Paul CL, Cameron EC, Lynagh MC, Hall AE, Tzelepis F, 'Financial and social impact of supporting a haematological cancer survivor', European Journal of Cancer Care, 21 169-176 (2012) [C1]
Citations Scopus - 11Web of Science - 8
Co-authors Marita Lynagh, Chris Paul, Mariko Carey, Flora Tzelepis
2012 Morrison V, Henderson BJ, Zinovieff F, Davies G, Cartmell R, Hall A, Gollins S, 'Common, important, and unmet needs of cancer outpatients', European Journal of Oncology Nursing, 16 115-123 (2012)

Purpose: To maximize patient well-being, health and social care should, whenever possible, address individual patient needs. The present study aims firstly, to identify prevalent,... [more]

Purpose: To maximize patient well-being, health and social care should, whenever possible, address individual patient needs. The present study aims firstly, to identify prevalent, salient and unmet needs amongst cancer outpatients, and secondly, to explore socio-demographic and clinical influences on expressed need. Methods: One-hundred and ten outpatients registered at a UK cancer treatment centre completed a self-report questionnaire measuring the presence, salience and degree to which 80 need items were met. Six broad cancer sites were represented: urology, colorectal, breast, gynaecology, haematology, and head and neck. Results: The mean number of needs reported was 27. The top five needs concerned the treatment, care and health information patients receive from healthcare professionals, all of which were rated as well met. Least met needs included receiving genetic information, information about lifestyle changes, help with worries about spread or recurrence, and parking near treatment centres. Salient needs showed greater variation across the sample and were often unmet, for example the need for genetic information, and the need for information about symptoms/indicators of recurrence. Gender (female), age (younger), having an informal caregiver, and cancer site all affected aspects of need; whereas time since diagnosis and type of treatment did not. Conclusions: Acknowledging these influences on patient need could help guide patient-centred support services with potential gains to patient satisfaction and well-being. © 2011 Elsevier Ltd.

DOI 10.1016/j.ejon.2011.04.004
Citations Scopus - 31
2012 Lynagh MC, Bonevski B, Sanson-Fisher RW, Symonds IM, Scott A, Hall AE, Oldmeadow CJ, 'An RCT protocol of varying financial incentive amounts for smoking cessation among pregnant women', BMC Public Health, 12 1032 (2012) [C3]
Citations Scopus - 4Web of Science - 6
Co-authors Rob Sanson-Fisher, Ian Symonds, Christopher Oldmeadow, Billie Bonevski, Marita Lynagh
2011 Zucca AC, Boyes AW, Newling G, Hall AE, Girgis A, 'Travelling all over the countryside: Travel-related burden and financial difficulties reported by cancer patients in New South Wales and Victoria', Australian Journal of Rural Health, 19 298-305 (2011) [C1]
DOI 10.1111/j.1440-1584.2011.01232.x
Citations Scopus - 19Web of Science - 18
Co-authors Allison Boyes, Alison Zucca
2011 Paul CL, Carey ML, Hall AE, Lynagh MC, Sanson-Fisher RW, Henskens FA, 'Improving access to information and support for patients with less common cancers: hematologic cancer patients' views about web-based approaches', Journal of Medical Internet Research, 13 (2011) [C1]
DOI 10.2196/jmir.1894
Citations Scopus - 10Web of Science - 11
Co-authors Rob Sanson-Fisher, Frans Henskens, Mariko Carey, Chris Paul, Marita Lynagh
Show 39 more journal articles

Conference (18 outputs)

Year Citation Altmetrics Link
2017 Waller A, Sanson-Fisher R, Zdenkowski N, Douglas C, Walsh J, Hall A, 'Are older and seriously ill Australians planning for their future medical care?', PSYCHO-ONCOLOGY (2017)
Co-authors Rob Sanson-Fisher, Charles Douglas, Amy Waller
2017 Boyes A, Turon H, Hall A, Sanson-Fisher R, 'Cancer patients' preferences for models of peer support in the digital age: A cross-sectional survey', PSYCHO-ONCOLOGY (2017)
Co-authors Allison Boyes, Rob Sanson-Fisher
2016 Lynam J, Hall A, Ayoola A, Sridharan S, Henskens F, Smith A, et al., 'DECISION-MAKING PREFERENCES AND SATISFACTION OF STAGE ONE TESTICULAR CANCER PATIENTS', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY (2016)
Co-authors Frans Henskens
2016 Hall A, Lynam J, Ayoola A, Sridharan S, Henskens F, Smith A, et al., 'ASSESSING THE INFORMATION NEEDS OF STAGE ONE TESTICULAR CANCER PATIENTS AND THEIR CARERS', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, Newcastle, Australia (2016)
Co-authors Frans Henskens
2016 Herrmann A, Mansfield E, Hall A, Sanson-Fisher R, Zdenkowski N, 'EXAMINING WHERE RESEARCH EFFORTS ON CANCER-RELATED DECISION AIDS HAVE BEEN MADE', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, Newcastle, Australia (2016)
Co-authors Rob Sanson-Fisher, Elise Mansfield
2016 Boyes A, Turon H, Hall A, Sanson-Fisher R, 'WHAT MODELS OF PEER SUPPORT ARE MOST APPEALING TO CANCER PATIENTS? A CROSS-SECTIONAL SURVEY', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY (2016)
Co-authors Rob Sanson-Fisher, Allison Boyes
2015 Paul CL, Boyes A, Searles A, Carey M, Turon H, Hall A, Bisquera A, 'CANCER MEDICINE AFFORDABILITY AND FINANCIAL IMPACTS OF CANCER IN AUSTRALIA: IMPACTS ON DECISION-MAKING AND PERCEIVED FINANCIAL BURDEN', Asia-Pacific Journal of Clinical Oncology (2015) [E3]
Co-authors Allison Boyes, Chris Paul, Mariko Carey
2014 Tzelepis F, Sanson-Fisher RW, Hall AE, Carey ML, Paul CL, Clinton-McHarg T, 'DEVELOPMENT AND PSYCHOMETRIC EVALUATION OF THE QUALITY OF PATIENT-CENTERED CANCER CARE MEASURE WITH HAEMATOLOGICAL CANCER SURVIVORS', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY (2014) [E3]
Co-authors Mariko Carey, Rob Sanson-Fisher, Chris Paul, Flora Tzelepis, Tara Clinton-Mcharg
2014 Hall A, Nguyen S, Tran H, Sanson-Fisher R, Carey M, 'PATIENTS PERCEPTIONS OF WHAT MAY HAVE CAUSED THEIR CANCER: A CROSS-SECTIONAL INVESTIGATION OF VIETNAMESE RADIOTHERAPY CANCER PATIENTS', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY (2014) [E3]
Co-authors Mariko Carey, Rob Sanson-Fisher
2014 Hall A, Tzelepis F, Lynagh M, Sanson-Fisher R, D'Este C, 'PREVALENCE AND ASSOCIATES OF THE TOP HIGH/VERY HIGH UNMET NEEDS OF AUSTRALIAN HAEMATOLOGICAL CANCER SURVIVORS', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY (2014) [E3]
Co-authors Marita Lynagh, Catherine Deste, Flora Tzelepis, Rob Sanson-Fisher
2014 Hall AE, Paul C, Bryant J, Lynagh M, Rowlings P, Enjeti AK, et al., 'TO ADHERE OR NOT TO ADHERE: RATES AND FACTORS IMPACTING ON MEDICATION ADHERENCE IN HAEMATOLOGICAL CANCER PATIENTS', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY (2014) [E3]
Citations Scopus - 6
Co-authors Marita Lynagh, Chris Paul
2013 Tzelepis F, Sanson-Fisher R, Hall A, Carey M, Paul C, Clinton-McHarg T, 'Development and Psychometric Evaluation of a Quality of Patient-Centred Cancer Care Measure', PSYCHO-ONCOLOGY (2013) [E3]
Co-authors Chris Paul, Mariko Carey, Tara Clinton-Mcharg, Flora Tzelepis, Rob Sanson-Fisher
2013 Hall A, Lynagh M, Sanson-Fisher R, Tzelepis F, D'Este C, 'Unmet Needs: What do Hematological Cancer Survivors Want Help With?', PSYCHO-ONCOLOGY (2013) [E3]
Co-authors Marita Lynagh, Catherine Deste, Flora Tzelepis, Rob Sanson-Fisher
2013 Hall A, D'Este C, Tzelepis F, Lynagh M, Sanson-Fisher R, 'Survivor Unmet Needs Survey (SUNS) for Hematological Cancer Survivors: A Psychometric Assessment', PSYCHO-ONCOLOGY (2013) [E3]
Co-authors Rob Sanson-Fisher, Flora Tzelepis, Catherine Deste, Marita Lynagh
2013 Lynagh MC, Bonevski B, Sanson-Fisher R, Symonds I, Scott A, Hall A, Oldmeadow C, 'Should we pay pregnant smokers to quit? Preliminary findings of a feasibility trial.', Journal of Smoking Cessation, Sydney (2013) [E3]
DOI 10.1017/jsc.2013.26
Co-authors Marita Lynagh, Rob Sanson-Fisher, Ian Symonds, Christopher Oldmeadow, Billie Bonevski
2011 Mackenzie LJ, Sanson-Fisher RW, Carey ML, Hall AE, 'Who should make disclosure decisions? Cancer patients' preferences for life expectancy disclosure', Psycho-Oncology, Antalya, Turkey (2011) [E3]
Co-authors Rob Sanson-Fisher, Mariko Carey, Lisa Mackenzie
2009 Hall AE, Boyes AW, Bowman JA, Zucca AC, Girgis A, ''The young ones': Psychosocial wellbeing and service utilisation of young cancer survivors', Asia-Pacific Journal of Clinical Oncology, Gold Coast, QLD (2009) [E3]
DOI 10.1111/j.1743-7563.2009.01252.x
Co-authors Jenny Bowman, Alison Zucca, Allison Boyes
2009 Zucca AC, Boyes AW, Girgis A, Hall AE, 'Travel all over the countryside: Travelling for cancer treatment in NSW and Victoria', Asia-Pacific Journal of Clinical Oncology, Gold Coast, QLD (2009) [E3]
DOI 10.1111/j.1743-7563.2009.01252.x
Co-authors Allison Boyes, Alison Zucca
Show 15 more conferences
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Grants and Funding

Summary

Number of grants 3
Total funding $1,291,378

Click on a grant title below to expand the full details for that specific grant.


20171 grants / $1,251,378

Improving timely diagnosis and provision of best care for Aboriginal and Torres Strait Islander people living with dementia: A cluster RCT$1,251,378

Funding body: NHMRC (National Health & Medical Research Council)

Funding body NHMRC (National Health & Medical Research Council)
Project Team Doctor Jamie Bryant, Professor Sandra Eades, Assoicate Professor Alan Clough, Professor Michael Lowe, Dr Megan Passey, Professor Gail Garvey, Doctor Megan Freund, Professor Chris Doran, Miss Alix Hall, Ms NOLA Ries
Scheme Boosting Dementia Research Grants
Role Investigator
Funding Start 2017
Funding Finish 2019
GNo G1700011
Type Of Funding Aust Competitive - Commonwealth
Category 1CS
UON Y

20142 grants / $40,000

Quality of cancer care from the patient perspective: An international comparison study$20,000

Funding body: Hunter Medical Research Institute

Funding body Hunter Medical Research Institute
Project Team Laureate Professor Robert Sanson-Fisher, Associate Professor Mariko Carey, Dr Megumi Uchida, Doctor Flora Tzelepis, Ms Alison Zucca, Miss Alix Hall, Miss Lisa Mackenzie
Scheme Project Grant
Role Investigator
Funding Start 2014
Funding Finish 2014
GNo G1400058
Type Of Funding Grant - Aust Non Government
Category 3AFG
UON Y

Develop and evaluate a three-year strategic plan addressing sun exposure, skin cancer prevention and vitamin D$20,000

Funding body: Cancer Council NSW

Funding body Cancer Council NSW
Project Team Laureate Professor Robert Sanson-Fisher, Doctor Jamie Bryant, Associate Professor Mariko Carey, Doctor Luke Wolfenden, Doctor Amy Waller, Mrs Elizabeth Tracey, Miss Alix Hall
Scheme Research Grant
Role Investigator
Funding Start 2014
Funding Finish 2015
GNo G1400744
Type Of Funding Grant - Aust Non Government
Category 3AFG
UON Y
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Research Supervision

Number of supervisions

Completed0
Current3

Total current UON EFTSL

PhD0.73

Current Supervision

Commenced Level of Study Research Title Program Supervisor Type
2016 PhD Advance planning for health care and research participation: Law, ethics and practice PhD (Behavioural Science), Faculty of Health and Medicine, The University of Newcastle Co-Supervisor
2015 PhD Working towards patient-centred decision making in cancer care PhD (Behavioural Science), Faculty of Health and Medicine, The University of Newcastle Co-Supervisor
2013 PhD Patient Perceptions of Potentially Threatening Interventions PhD (Behavioural Science), Faculty of Health and Medicine, The University of Newcastle Co-Supervisor
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Miss Alix Hall

Position

Post Doctoral Researcher
Mon-Fri: Priority Research Centre for Health Behaviour
School of Medicine and Public Health
Faculty of Health and Medicine

Focus area

Health Behaviour Sciences

Contact Details

Email alix.hall@newcastle.edu.au
Phone Monday-Friday:(02)40420641

Office

Room Monday to Friday: W4-088 HMRI building
Building HMRI Building
Location Rankin Park

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