2024 |
Delaney T, Jackson J, Lecathelinais C, Clinton-McHarg T, Lamont H, Yoong SL, et al., 'Long-Term Effectiveness of a Multi-Strategy Choice Architecture Intervention in Increasing Healthy Food Choices of High-School Students From Online Canteens (Click & Crunch High Schools): Cluster Randomized Controlled Trial', Journal of Medical Internet Research, 26 e51108-e51108
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2023 |
Taylor J, Fradgley EA, Clinton-McHarg T, Hall A, Paul CL, 'Perceived importance of emotional support provided by health care professionals and social networks: Should we broaden our focus for the delivery of supportive care?', Asia Pac J Clin Oncol, 19 681-689 (2023) [C1]
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Nova |
2022 |
Delaney T, Yoong SL, Lamont H, Lecathelinais C, Wolfenden L, Clinton-McHarg T, et al., 'The efficacy of a multi-strategy choice architecture intervention on improving the nutritional quality of high school students' lunch purchases from online canteens (Click & Crunch High Schools): a cluster randomized controlled trial', INTERNATIONAL JOURNAL OF BEHAVIORAL NUTRITION AND PHYSICAL ACTIVITY, 19 (2022) [C1]
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Nova |
2022 |
Taylor J, Fradgley EA, Clinton-McHarg T, Hall A, Paul CL, 'Referral and uptake of services by distressed callers to the Cancer Council Information and Support telephone service', Asia-Pacific Journal of Clinical Oncology, 18 303-310 (2022) [C1]
Background: Patient-centered cancer care includes emotional, informational, and practical support that is personalised to the needs of patients and inclusive of family and friends... [more]
Background: Patient-centered cancer care includes emotional, informational, and practical support that is personalised to the needs of patients and inclusive of family and friends. However, when supportive care referrals are offered in hospital settings, distressed patients and carers do not consistently act on those referrals, which can prolong patient suffering. The degree to which sub-optimal referral uptake also occurs in Australian telephone support services is unknown. Aims: To report, among a sample of distressed patients and caregivers who called a cancer information and support service: 1) the types of services used; 2) proportion who received and actioned a referral (uptake); 3) associations between referral to a service and callers¿ characteristics); and, 4) associations between uptake of a referred service and callers¿ characteristics. Methods: This study used cross-sectional data collected at 3-month post-baseline from control participants (usual care group) enrolled in the Structured Triage and Referral by Telephone (START) trial. The START trial recruited distressed adult cancer patients and caregivers from the Cancer Council Information and Support Service (CIS). A research assistant conducted a 30¿45 min telephone interview with participants, which included recall of referrals provided by CIS staff and reported uptake of referral(s) to the offered service types. Results: Most patients (98%) and caregivers (97%) reported receiving a referral to a service. For patients and caregivers respectively, information materials (71%, 77%), CIS call-back (51%, 43%), practical services (52%, 45%), and group peer support (49%, 51%) were the services most frequently offered. For callers receiving a referral, uptake was highest for information materials (91%) and CIS call-backs (89%) and lowest for specialist psychological services (30%). Significant association was found between older age and reduced uptake of services (p = 0.03). Conclusion: The high uptake rate of CIS call-backs suggests it is a potentially more acceptable form of support compared to specialist psychological services. Efforts to reduce the barriers to telephone-based psychological services are required. Specifically, older age peoples¿ and caregivers¿ preferences for support and priorities who may benefit from a referral coordinator.
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Nova |
2022 |
Clinton-McHarg T, Gibson L, Bartlem K, Murray S, Ryall J, Orr M, et al., 'Barriers to the Provision of Preventive Care to People Living with Mental Health Conditions: Self-Report by Staff Working in an Australian Community Managed Organisation.', International journal of environmental research and public health, 19 4458 (2022) [C1]
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Nova |
2022 |
Dray J, Gibson L, Clinton-McHarg T, Byrnes E, Wynne O, Bartlem K, et al., 'Exploring Support Provided by Community Managed Organisations to Address Health Risk Behaviours Associated with Chronic Disease among People with Mental Health Conditions: A Qualitative Study with Organisational Leaders.', International journal of environmental research and public health, 19 5533 (2022) [C1]
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Nova |
2021 |
Taylor J, Fradgley EA, Clinton-McHarg T, Byrnes E, Paul CL, 'Access to support for Australian cancer caregivers: in-depth qualitative interviews exploring barriers and preferences for support', Journal of Psychosocial Oncology Research & Practice, 3 (2021) [C1]
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Nova |
2021 |
Metse AP, Fehily C, Clinton-McHarg T, Wynne O, Lawn S, Wiggers J, Bowman JA, 'Self-reported suboptimal sleep and receipt of sleep assessment and treatment among persons with and without a mental health condition in Australia: a cross sectional study', BMC PUBLIC HEALTH, 21 (2021) [C1]
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Nova |
2021 |
Metse AP, Clinton-Mcharg T, Skinner E, Yogaraj Y, Colyvas K, Bowman J, 'Associations between suboptimal sleep and smoking, poor nutrition, harmful alcohol consumption and inadequate physical activity ( snap risks ): A comparison of people with and without a mental health condition in an australian community survey', International Journal of Environmental Research and Public Health, 18 (2021) [C1]
Introduction: People with a mental health condition experience disproportionate morbidity and mortality compared to the general population. This inequity has been largely attribut... [more]
Introduction: People with a mental health condition experience disproportionate morbidity and mortality compared to the general population. This inequity has been largely attributed to a higher prevalence of chronic disease risk behaviours including smoking, poor nutrition, harmful alcohol consumption and inadequate physical activity (¿SNAP risks¿). Suboptimal sleep is highly prevalent among people with a mental health condition and, as an identified risk behaviour for several chronic diseases, has been implicated as an additional contributor to this health inequity. Research involving people without a mental health condition suggests associations between poor sleep and each SNAP risk; however, interactions with mental health status have not been reported in an Australian population. This study explored associations between suboptimal sleep and all four SNAP risks, and assessed whether they vary by mental health status. Materials and Methods: A descriptive study (n = 1265) was undertaken using self-report data from a cross-sectional telephone survey of Australian adults. Based on national guidelines and recommendations that indicate when someone might be at risk of adverse health effects, SNAP risks and sleep variables were reduced to two levels: ¿at risk¿ or ¿not at risk¿; and ¿appropriate¿ or ¿suboptimal¿, respectively. Chi square tests and multivariable logistic regression models explored associations between suboptimal sleep, SNAP risks and mental health status. Results: Fifteen per cent (n = 184) of participants identified as having a mental health condition in the past 12 months. Being at risk of adverse health effects due to smoking had the strongest association with several measures of suboptimal sleep (ps < 0.05). Two-way interactions revealed that being at risk of adverse health effects due to alcohol use and physical inactivity resulted in a significantly greater likelihood of suboptimal sleep duration (OR 3.06, 95% CI 1.41 to 6.64; OR 3.06, 95% CI 1.41 to 6.69) and nap duration (OR 7.96, 95% CI 1.90 to 33.22), respectively, for people with a mental health condition compared to those without. Conclusions: The findings suggest associations between suboptimal sleep and smoking, risky alcohol consumption and physical inactivity, with the latter two perhaps being stronger among people with a mental health condition compared to those without such a condition. Poor sleep should be considered in interventions to address smoking, alcohol and physical activity; and vice versa. This study lends further support for the value of multirisk lifestyle interventions to promote physical and mental health for people with mental health conditions.
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Nova |
2021 |
Gibson L, Bartlem K, Clinton-McHarg T, Wilczynska M, Rasmussen A, Bailey J, et al., 'The Provision of Preventive Care for Chronic Disease Risk Behaviours to People with a Mental Health Condition: A Survey of Staff from One Australian Community Managed Organisation', Journal of Psychosocial Rehabilitation and Mental Health, 8 191-198 (2021) [C1]
People with mental health conditions have a median reduced life expectancy of 10¿years, largely due to a higher prevalence of chronic diseases. Health risk behaviours, including t... [more]
People with mental health conditions have a median reduced life expectancy of 10¿years, largely due to a higher prevalence of chronic diseases. Health risk behaviours, including tobacco smoking, inadequate fruit and vegetable consumption, harmful alcohol consumption and physical inactivity, contribute substantially to the burden of chronic disease for this population. Community Managed Organisations (CMOs) may have an important role in addressing these behaviours among consumers with a mental health condition; however, little previous research has explored the provision of preventive care from these organisations. To fill this research gap, a cross-sectional online survey was conducted between August and November 2017 with staff (n = 174) of one CMO which has multiple services in two states of Australia. The survey explored the provision of preventive care for four key health risk behaviours. Optimal preventive care (to = 80% consumers for all four behaviours) was reported more frequently for brief advice (28%) and assessment (26%), than for assistance (13%) and referring/connecting consumers to services for help (12%) with modifying health risk behaviours. Preventive care to = 80% consumers was least frequently reported for alcohol consumption and most frequently reported for physical activity. The provision of preventive care for health risk behaviours appears to be part of CMO staffs¿ existing practice; however, it does not appear to be routinely provided across all behaviours. Further research exploring the barriers and facilitators to providing preventive care is needed to understand how CMOs may better support people with a mental health condition to improve their health risk behaviours.
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Nova |
2021 |
Clinton-McHarg T, Paul C, Sanson-Fisher R, Turon H, Butler M, Lindeman R, 'Are the Physical Environments of Treatment Centres Meeting Recommendations for Patient-Centred Care? Perceptions of Haematological Cancer Patients', INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 18 (2021) [C1]
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Nova |
2021 |
Gibson L, Clinton-McHarg T, Wilczynska M, Latter J, Bartlem K, Henderson C, et al., 'Preventive care practices to address health behaviours among people living with mental health conditions: A survey of Community Managed Organisations', Preventive Medicine Reports, 23 (2021) [C1]
People living with mental health conditions have a reduced life expectancy of approximately 10 years compared to the general population, largely due to physical chronic diseases a... [more]
People living with mental health conditions have a reduced life expectancy of approximately 10 years compared to the general population, largely due to physical chronic diseases and higher rates of tobacco smoking, poor nutrition, harmful alcohol consumption, physical inactivity and poor sleep behaviours. Community managed organisations (CMOs) may play a valuable role in providing preventive care to people with mental health conditions (consumers) to address these health behaviours. This paper reports the findings of a cross-sectional survey undertaken between November 2018 and February 2019 with leaders of CMOs (n = 76) that support people with mental health conditions in the state of New South Wales, Australia to: 1) measure the provision of preventive care (screening, support, and connections to specialist services) for five health behaviours; 2) identify the presence of key organisational features (e.g., data collection, staff training); and 3) explore if these organisational features were associated with the provision of preventive care. Preventive care provision to a majority of consumers (50% or more) was least frequently reported for tobacco smoking and most frequently reported for physical activity. Staff training and guidelines regarding the provision of preventive care were associated with the provision of such care. The results demonstrate that CMOs are already engaged in providing preventive care to some extent, with certain behaviours and preventive care elements addressed more frequently than others. Further research with additional CMO stakeholders, including staff and consumers, is needed to gain a deeper understanding of factors that may underlie CMOs capacity to routinely provide preventive care.
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Nova |
2021 |
Clinton-Mcharg T, Delaney T, Lamont H, Lecathelinais C, Yoong SL, Wolfenden L, et al., 'A cross-sectional study of the nutritional quality of new south wales high school student food and drink purchases made via an online canteen ordering system', Nutrients, 13 (2021) [C1]
Unhealthy dietary patterns in adolescence are associated with an increased risk of future chronic disease. This study aimed to assess online canteen lunch purchases made by high s... [more]
Unhealthy dietary patterns in adolescence are associated with an increased risk of future chronic disease. This study aimed to assess online canteen lunch purchases made by high school students to identify: (1) the nutrient composition of purchases (energy, saturated fat, sugar, sodium, percent energy from saturated fat and total sugar); (2) the proportion of items classified as healthier (¿Everyday¿) and less healthy (¿Occasional¿ or ¿Should not be sold¿) according to the New South Wales Healthy Canteen Strategy; (3) the frequency of purchases by product type (e.g., salty snacks), their classification and nutrient composition; and (4) associations between student characteristics and the nutrient composition and classification of purchases. The average order contained 2075 kJ of energy, 6.4 g of saturated fat, 18.4 g of sugar and 795 mg of sodium. Less healthy (¿Occasional¿ and ¿Should not be sold¿) items combined accounted for 56% of purchases. The most frequently purchased products were burgers and crumbed/coated foods. Students in higher grades purchased a significantly higher mean percent of ¿Everyday¿ items, compared to students in grades 7 or 8. The majority of high school student purchases were less healthy (¿Occasional¿ or ¿Should not be sold¿) items, warranting further investigation of factors influencing online canteen purchasing behaviour in this setting.
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Nova |
2021 |
Metse AP, Fehily C, Clinton-McHarg T, Wynne O, Lawn S, Wiggers J, Bowman JA, 'Self-reported suboptimal sleep and receipt of sleep assessment and treatment among persons with and without a mental health condition in Australia: a cross sectional (vol 21, pg 463, 2021)', BMC PUBLIC HEALTH, 21 (2021)
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2021 |
Taylor J, Fradgley E, Clinton-McHarg T, Byrnes E, Paul C, 'What are the sources of distress in a range of cancer caregivers? A qualitative study', Supportive Care in Cancer, 29 2443-2453 (2021) [C1]
Purpose: Caring for a person diagnosed with cancer is associated with elevated distress that may impact on caregiver health and patient outcomes. However, caregivers¿ distress is ... [more]
Purpose: Caring for a person diagnosed with cancer is associated with elevated distress that may impact on caregiver health and patient outcomes. However, caregivers¿ distress is relatively under-researched. This Australian study explored a range of caregivers¿ reported sources of distress. Methods: The grounded theory approach informed semi-structured interviews that were conducted with a purposive and broad range sample of distressed caregivers identified through the ¿Structured Triage And Referral by Telephone¿ (START) trial. A grounded theory framework was used to generate themes with data analysed by two independent coders using the NVivo software. Results: Caregivers (n = 14) were aged from 25 to 80 years, including two bereaved caregivers. The relationships of the caregivers to the patients were as follows: partner (n = 8), parent (n = 1), child (n = 3), sibling (n = 1), and friend (n = 1). Six major themes emerged in relation to sources of distress: (1) a lack of sufficient and timely information; (2) uncertainty; (3) the role and duties of caregiving; (4) lack of family-centred services; (5) practical challenges; and (6) impact of distress. Conclusion: Caregivers face a number of specific challenges beyond those experienced by patients. It is essential to ensure that caregivers are actively well-informed and well-supported alongside the person who is diagnosed with cancer.
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Nova |
2020 |
Taylor J, Fradgley EA, Clinton-McHarg T, Roach D, Paul CL, 'Distress screening and supportive care referrals used by telephone-based health services: a systematic review', Supportive Care in Cancer, 28 2059-2069 (2020) [C1]
Purpose: People affected by chronic diseases such as cancer report high levels of distress and a need for psychosocial support. It is unclear whether telephone-based services for ... [more]
Purpose: People affected by chronic diseases such as cancer report high levels of distress and a need for psychosocial support. It is unclear whether telephone-based services for people affected by chronic disease are a practical setting for implementing distress screening, referral protocols and rescreening to direct supportive care where it is needed. This systematic review aimed to describe the published literature regarding distress screening and supportive care referral practices in telephone-based services for people affected by chronic diseases such as cancer. Methods: A systematic literature search of MEDLINE, Embase, PsycInfo, CINAHL, Cochrane and Scopus was conducted in February 2018. Included quantitative studies involved: patients or caregivers affected by chronic diseases including cancer and describe a health service assessing psychosocial needs or distress via telephone. Extracted data included the type of cancer or other chronic disease, sample size, screening tool, referral or rescreening protocols, and type of health service. Results: The search identified 3989 potential articles with additional searches returning 30 studies (n = 4019); fourteen were eligible for full-text review. Of the 14 studies, 13 included cancer patients. Studies were across multiple settings and identified nine distress screening tools in use. Conclusion: The reviewed studies indicate that validated distress-screening tools are being used via telephone to identify distress, particularly in relation to cancer. Screening-driven supportive care referrals are also taking place in telephone-based services. However, not all services use an established referral protocol. Ongoing rescreening of callers¿ distress is also limited despite it being an important recommendation from psycho-oncology guidelines.
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Nova |
2020 |
Razak LA, Jones J, Clinton-McHarg T, Wolfenden L, Lecathelinais C, Morgan PJ, et al., 'Implementation of policies and practices to increase physical activity among children attending centre-based childcare: A cross-sectional study', Health Promotion Journal of Australia, 31 207-215 (2020) [C1]
Issue addressed: Supporting centre-based childcare services to create physical activity (PA) environments is a recommended strategy to improve child PA. This study aimed to descri... [more]
Issue addressed: Supporting centre-based childcare services to create physical activity (PA) environments is a recommended strategy to improve child PA. This study aimed to describe the implementation of PA policies and practices by these services, and to examine the associations with service characteristics. Methods: Nominated supervisors of childcare services (n¿=¿309) in the Hunter New England region, New South Wales, Australia, completed a telephone interview. Using previously validated measures, the interview assessed the implementation of evidence-based practices shown to be associated with child PA. This includes: (a) provision of active play opportunities, (b) portable play equipment availability, (c) delivery of daily fundamental movement skills, (d) having at least 50% of staff trained in promoting child PA the past 5¿years and (e) having written PA and small screen recreation policies. Results: Although 98% (95% CI 96, 99) of childcare services provided active play opportunities for at least 25% of their daily opening hours, only 8% (95% CI 5, 11) of services fully implemented all policies and practices; with no service characteristic associated with full implementation. Long day care service had twice the odds of having a written PA policy (OR 2.0, 95% CI 0.7, 5.8), compared to preschools (adjusted for service size, socio-economic disadvantage and geographical location). Conclusions: Improvements could be made to childcare services¿ operations to support the promotion of child PA. So what?: To ensure the benefits to child health, childcare services require support to implement a number of PA promoting policies and practices that are known to improve child PA.
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Nova |
2020 |
Gonzalez S, Kingsland M, Hall A, Clinton-McHarg T, Lecathelinais C, Zukowski N, et al., 'Alcohol and fast food sponsorship in sporting clubs with junior teams participating in the Good Sports program: a cross-sectional study', Australian and New Zealand Journal of Public Health, 44 145-151 (2020) [C1]
Objective: To examine: alcohol and fast food sponsorship of junior community sporting clubs; the association between sponsorship and club characteristics; and parent and club repr... [more]
Objective: To examine: alcohol and fast food sponsorship of junior community sporting clubs; the association between sponsorship and club characteristics; and parent and club representative attitudes toward sponsorship. Methods: A cross-sectional telephone survey of representatives from junior community football clubs across New South Wales and Victoria, Australia, and parents/carers of junior club members. Participants were from junior teams with Level 3 accreditation in the ¿Good Sports¿ program. Results: A total of 79 club representatives and 297 parents completed the survey. Half of participating clubs (49%) were sponsored by the alcohol industry and one-quarter (27%) were sponsored by the fast food industry. In multivariate analyses, the odds of alcohol sponsorship among rugby league clubs was 7.4 (95%CI: 1.8¿31.0, p=<0.006) that of AFL clubs, and clubs located in regional areas were more likely than those in major cities to receive fast food industry sponsorship (OR= 9.1; 95%CI: 1.0¿84.0, p=0.05). The majority (78¿81%) of club representatives and parents were supportive of restrictions to prohibit certain alcohol sponsorship practices, but a minority (42%) were supportive of restrictions to prohibit certain fast food sponsorship practices. Conclusions: Large proportions of community sports clubs with junior members are sponsored by the alcohol industry and the fast food industry. There is greater acceptability for prohibiting sponsorship from the alcohol industry than the fast food industry. Implications for public health: Health promotion efforts should focus on reducing alcohol industry and fast food industry sponsorship of junior sports clubs.
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Nova |
2020 |
Bailey JM, Clinton-McHarg TL, Wye PM, Wiggers JH, Bartlem KM, Bowman JA, 'Preventive care for physical activity and fruit and vegetable consumption: a survey of family carer expectations of health service delivery for people with a mental health condition', BMC HEALTH SERVICES RESEARCH, 20 (2020) [C1]
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Nova |
2020 |
Fehily C, Hodder R, Bartlem K, Wiggers J, Wolfenden L, Dray J, et al., 'The effectiveness of interventions to increase preventive care provision for chronic disease risk behaviours in mental health settings: A systematic review and meta-analysis', Preventive Medicine Reports, 19 (2020) [C1]
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Nova |
2019 |
McFadyen T, Wolfenden L, Kingsland M, Tindall J, Sherker S, Heaton R, et al., 'Sustaining the implementation of alcohol management practices by community sports clubs: A randomised control trial', BMC Public Health, 19 (2019) [C1]
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Nova |
2019 |
Clinton-McHarg T, Gonzalez S, Milner S, Sherker S, Kingsland M, Lecathelinais C, et al., 'Implementing health policies in Australian junior sports clubs: an RCT', BMC PUBLIC HEALTH, 19 (2019) [C1]
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Nova |
2019 |
Fradgley EA, Boltong A, O'Brien L, Boyes AW, Lane K, Beattie A, et al., 'Implementing Systematic Screening and Structured Care for Distressed Callers Using Cancer Council's Telephone Services: Protocol for a Randomized Stepped-Wedge Trial', JMIR RESEARCH PROTOCOLS, 8 93-103 (2019)
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2019 |
Razak LA, Clinton-McHarg T, Jones J, Yoong SL, Grady A, Finch M, et al., 'Barriers to and facilitators of the implementation of environmental recommendations to encourage physical activity in center-based childcare services: A systematic review', Journal of Physical Activity and Health, 16 1175-1186 (2019) [C1]
Background: Identifying factors influencing the implementation of evidence-based environmental recommendations to promote physical activity in childcare services is required to de... [more]
Background: Identifying factors influencing the implementation of evidence-based environmental recommendations to promote physical activity in childcare services is required to develop effective implementation strategies. This systematic review aimed to: (1) identify barriers and facilitators reported by center-based childcare services impacting the implementation of environmental recommendations to increase physical activity among children, (2) synthesize these factors according to the 14 domains of the "Theoretical Domains Framework," and (3) report any associations between service or provider characteristics and the reported implementation of such recommendations. Methods: Electronic searches were conducted in 6 scientific databases (eg, MEDLINE) and Google Scholar to identify studies reporting data from childcare staff or other stakeholders responsible for childcare operations. Included studies were based on childcare settings and published in English. From 2164 identified citations, 19 articles met the inclusion criteria (11 qualitative, 4 quantitative, and 4 mixed methods). Results: Across all articles, the majority of factors impacting implementation fell into the "environmental context and resources" domain (eg, time, equipment, and space; n = 19) and the "social influences" domain (eg, support from parents, colleagues, supervisors; n = 11). Conclusion: The current review provides guidance to improve the implementation of environmental recommendations in childcare services by addressing environmental, resource, and social barriers.
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Nova |
2019 |
Carey M, Boyes AW, Bryant J, Turon H, Clinton-Mcharg T, Sanson-Fisher R, 'The Patient Perspective on Errors in Cancer Care: Results of a Cross-Sectional Survey', Journal of Patient Safety, 15 322-327 (2019) [C1]
Objective The objective of this study was to explore medical oncology outpatients' perceived experiences of errors in their cancer care. Methods A cross-sectional survey was ... [more]
Objective The objective of this study was to explore medical oncology outpatients' perceived experiences of errors in their cancer care. Methods A cross-sectional survey was conducted. English-speaking medical oncology outpatients aged 18 years or older were recruited from 9 Australian cancer treatment centers. Participants completed 2 paper-and-pencil questionnaires: An initial survey on demographic, disease and treatment characteristics upon recruitment; and a second survey on their experiences of errors in cancer care 1 month later. Results A total of 1818 patients (80%) consented to participate, and of these, 1136 (62%) completed both surveys. One hundred forty-eight participants (13%) perceived that an error had been made in their care, of which one third (n = 46) reported that the error was associated with severe harm. Of those who perceived an error had been made, less than half reported that they had received an explanation for the error (n = 65, 45%) and only one third reported receiving an apology (n = 50, 35%) or being told that steps had been taken to prevent the error from reoccurring (n = 52, 36%). Patients with university or vocational level education (odds ratio [OR] = 1.6 [1.09-2.45], P = 0.0174) and those who received radiotherapy (OR = 1.72 [1.16-2.57]; P = 0.0076) or "other" treatments (OR = 3.23 [1.08-9.63]; P = 0.0356) were significantly more likely to report an error in care. Conclusions There is significant scope to improve communication with patients and appropriate responses by the healthcare system after a perceived error in cancer care.
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Nova |
2019 |
Gonzalez S, Clinton-McHarg T, Kingsland M, Hall A, Lecathelinais C, Milner S, et al., 'Promotion of healthy eating in clubs with junior teams in Australia: A cross-sectional study of club representatives and parents', Health Promotion Journal of Australia, 30 15-19 (2019) [C1]
Issues addressed: To: (i) describe the prevalence of policies and practices promoting healthy eating implemented by sports clubs with junior teams; (ii) examine differences in suc... [more]
Issues addressed: To: (i) describe the prevalence of policies and practices promoting healthy eating implemented by sports clubs with junior teams; (ii) examine differences in such practices across geographic and operational characteristics of clubs; and (iii) describe the attitudes of club representatives and parents regarding the acceptability of sports clubs implementing policies and practices to promote healthy eating. Methods: Cross-sectional telephone surveys of junior community football club management representatives and parents/carers of junior players were conducted in the states of New South Wales and Victoria, Australia in 2016. Results: Seventy-nine of the 89 club representatives approached to participate completed the telephone survey. All clubs (100%; 95% CI 96.2-100.0) reported recommending fruit or water be provided to players after games or at half-time, 24% (95% CI 14.4-33.7) reported promoting healthy food options through prominent positioning at point of sale and only 8% (95% CI 1.6-13.6) of clubs had a written healthy eating policy. There were no significant differences between the mean number of healthy eating policies and practices implemented by club socio-economic or geographic characteristics. Club representatives and parents/carers were supportive of clubs promoting healthy eating for junior players. Conclusions: While there is strong support within sporting clubs with junior teams for policies and practices to promote healthy eating, their implementation is highly variable. So what?: A considerable opportunity remains for health promotion policy and practice improvement in clubs with junior teams, particularly regarding policies related to nutrition.
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Nova |
2019 |
Wolfenden L, Jones J, Parmenter B, Razak LA, Wiggers J, Morgan PJ, et al., 'Efficacy of a free-play intervention to increase physical activity during childcare: A randomized controlled trial', Health Education Research, 34 98-112 (2019) [C1]
The primary aim of this study was to assess the efficacy of a childcare-based intervention in increasing child physical activity by allowing children unrestricted access to outdoo... [more]
The primary aim of this study was to assess the efficacy of a childcare-based intervention in increasing child physical activity by allowing children unrestricted access to outdoor areas for free-play when structured activity is not taking place. A randomized controlled trial was conducted in six childcare services. Intervention services provided children unrestricted access outdoors for active free-play, while control services provided their usual scheduled periods of outdoor play. Consent was obtained from 231 children. Child moderate to vigorous activity (MVPA), the primary trial outcome, was assessed via accelerometer at baseline and 3 months post baseline. Intervention effects were examined using Generalised Linear Mixed Models. Controlling for child age, gender and baseline outcome measure, at follow-up there were no significant differences between groups in minutes of MVPA in-care (mean difference: 4.85; 95% CI: -3.96, 13.66; P = 0.28), proportion of wear time in-care spent in MVPA (mean difference: 1.52%; 95% CI: -0.50, 3.53; P = 0.14) or total physical activity in-care (mean difference in counts per minute: 23.18; 95% CI: -4.26, 50.61; P = 0.10), nor on measures of child cognition (P = 0.45-0.91). It was concluded that interventions addressing multiple aspects of the childcare and home environment might provide the greatest potential to improve child physical activity.
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Nova |
2018 |
Hodder RK, Stacey FG, O'Brien KM, Wyse RJ, Clinton-McHarg T, Tzelepis F, et al., 'Interventions for increasing fruit and vegetable consumption in children aged five years and under', COCHRANE DATABASE OF SYSTEMATIC REVIEWS, (2018)
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2018 |
Abdul Razak L, Yoong SL, Wiggers J, Morgan P, Jones J, Finch M, et al., 'Impact of scheduling multiple free-play periods in childcare on child moderate-to-vigorous physical activity: a cluster randomised trial', International Journal of Behavioral Nutrition and Physical Activity, 15 1-13 (2018) [C1]
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Nova |
2018 |
Hodder RK, O'Brien KM, Stacey FG, Wyse RJ, Clinton-McHarg T, Tzelepis F, et al., 'Interventions for increasing fruit and vegetable consumption in children aged five years and under (Review)', COCHRANE DATABASE OF SYSTEMATIC REVIEWS, (2018) [C1]
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Nova |
2018 |
Milner S, Sherker S, Clinton-McHarg T, Dray J, Zukowski N, Gonzalez S, et al., 'Cluster randomised controlled trial of a multicomponent intervention to support the implementation of policies and practices that promote healthier environments at junior sports clubs: study protocol', BMJ OPEN, 8 (2018)
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Nova |
2018 |
McFadyen T, Wolfenden L, Kingsland M, Tindall J, Rowland B, Sherker S, et al., 'Randomised controlled trial of a web-based programme in sustaining best practice alcohol management practices at community sports clubs: a study protocol', BMJ OPEN, 8 (2018)
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Nova |
2018 |
Tzelepis F, Clinton-McHarg T, Paul CL, Sanson-Fisher RW, Joshua D, Carey ML, 'Quality of patient-centered care provided to patients attending hematological cancer treatment centers', International Journal of Environmental Research and Public Health, 15 (2018) [C1]
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Nova |
2018 |
Carey M, Sanson-Fisher R, Clinton-McHarg T, Boyes A, Olver I, Oldmeadow C, et al., 'Examining variation across treatment clinics in cancer patients psychological outcomes: results of a cross sectional survey', Supportive Care in Cancer, 26 3201-3208 (2018) [C1]
Purpose: The majority of research on psychological outcomes for cancer patients has focussed on the role of individual characteristics, and disease and treatment factors. There ha... [more]
Purpose: The majority of research on psychological outcomes for cancer patients has focussed on the role of individual characteristics, and disease and treatment factors. There has been very little exploration of the potential contribution of the treatment clinic to these outcomes. This study explored whether there is variation among clinics in cancer patients¿ psychological outcomes. Methods: Cancer outpatients were recruited from 22 medical oncology and haematology clinics in Australia. Participants completed a pen and paper survey including the Hospital Anxiety and Depression Scale (HADS), as well as sociodemographic, disease and treatment characteristics. Results: Of those eligible to participate, 4233 (82%) consented and 2811 (81% of consenters) returned the completed survey. There was no statistically significant variation in HADS depression scores across clinics. Some difference in anxiety scores derived from the HADS questionnaire between clinics (p = 0.03) was found with the percentage of between-clinic variation estimated to be 1.11%. However, once all demographic, disease and treatment predictors were adjusted for there was no statistical differences between clinics (percent of between-clinic variation = 0.53%; p = 0.1415). Conclusions: Psychological outcomes were not found to vary between clinics. Other sources of variation including patient characteristics may over-ride between-clinic variability, if it exists.
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Nova |
2018 |
McFadyen T, Chai LK, Wyse R, Kingsland M, Yoong SL, Clinton-McHarg T, et al., 'Strategies to improve the implementation of policies, practices or programmes in sporting organisations targeting poor diet, physical inactivity, obesity, risky alcohol use or tobacco use: a systematic review', BMJ open, 8 (2018) [C1]
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Nova |
2018 |
Clinton-McHarg T, Janssen L, Delaney T, Reilly K, Regan T, Nathan N, et al., 'Availability of food and beverage items on school canteen menus and association with items purchased by children of primary-school age', Public Health Nutrition, 21 2907-2914 (2018) [C1]
Objective To (i) describe the proportion of foods and beverages available on school canteen menus classified as having high ('green'), moderate ('amber') or lo... [more]
Objective To (i) describe the proportion of foods and beverages available on school canteen menus classified as having high ('green'), moderate ('amber') or low ('red') nutritional value; (ii) describe the proportion of these items purchased by students; and (iii) examine the association between food and beverage availability on school canteen menus and food and beverage purchasing by students.Design A cross-sectional study was conducted as part of a larger randomised controlled trial (RCT).Setting A nested sample of fifty randomly selected government schools from the Hunter New England region of New South Wales, Australia, who had participated in an RCT of an intervention to improve the availability of healthy foods sold from school canteens, was approached to participate.Subjects School principals, canteen managers and students.Results The average proportion of green, amber and red items available on menus was 47·9, 47·4 and 4·7 %, respectively. The average proportion of green, amber and red items purchased by students was 30·1, 61·8 and 8·1 %, respectively. There was a significant positive relationship between the availability and purchasing of green (R 2=0·66), amber (R 2=0·57) and red menu items (R 2=0·61). In each case, a 1 % increase in the availability of items in these categories was associated with a 1·21, 1·35 and 1·67 % increase in purchasing of items of high, moderate and low nutritional value, respectively.Conclusions The findings provide support for school-based policies to improve the relative availability of healthy foods for sale in these settings.
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Nova |
2017 |
Seward K, Wolfenden L, Wiggers J, Finch M, Wyse R, Oldmeadow C, et al., 'Measuring implementation behaviour of menu guidelines in the childcare setting: confirmatory factor analysis of a theoretical domains framework questionnaire (TDFQ)', INTERNATIONAL JOURNAL OF BEHAVIORAL NUTRITION AND PHYSICAL ACTIVITY, 14 (2017) [C1]
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Nova |
2017 |
Wyse R, Wiggers J, Delaney T, Ooi JY, Marshall J, Clinton-McHarg T, Wolfenden L, 'The price of healthy and unhealthy foods in Australian primary school canteens', Australian and New Zealand Journal of Public Health, 41 45-47 (2017) [C1]
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Nova |
2017 |
Wolfenden L, Nathan NK, Sutherland R, Yoong SL, Hodder RK, Wyse RJ, et al., 'Strategies for enhancing the implementation of school-based policies or practices targeting risk factors for chronic disease', COCHRANE DATABASE OF SYSTEMATIC REVIEWS, (2017) [C1]
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Nova |
2017 |
Hodder RK, Stacey FG, Wyse RJ, O'Brien KM, Clinton-McHarg T, Tzelepis F, et al., 'Interventions for increasing fruit and vegetable consumption in children aged five years and under', COCHRANE DATABASE OF SYSTEMATIC REVIEWS, (2017) [C1]
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Nova |
2017 |
Jones J, Wyse R, Wiggers J, Yoong SL, Finch M, Lecathelinais C, et al., 'Dietary intake and physical activity levels of children attending Australian childcare services.', Nutr Diet, 74 446-453 (2017) [C1]
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Nova |
2016 |
Wolfenden L, Finch M, Wyse R, Clinton-McHarg T, Yoong SL, 'Time to focus on implementation: the need to re-orient research on physical activity in childcare services', AUSTRALIAN AND NEW ZEALAND JOURNAL OF PUBLIC HEALTH, 40 209-210 (2016)
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Nova |
2016 |
Clinton-McHarg T, Yoong SL, Tzelepis F, Regan T, Fielding A, Skelton E, et al., 'Psychometric properties of implementation measures for public health and community settings and mapping of constructs against the Consolidated Framework for Implementation Research: a systematic review', IMPLEMENTATION SCIENCE, 11 (2016) [C1]
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Nova |
2016 |
Wolfenden L, Milat AJ, Lecathelinais C, Skelton E, Clinton-McHarg T, Williams C, et al., 'A bibliographic review of public health dissemination and implementation research output and citation rates', Preventive Medicine Reports, 4 441-443 (2016) [C1]
The aim of this study was to describe the research output and citation rates (academic impact) of public health dissemination and implementation research according to research des... [more]
The aim of this study was to describe the research output and citation rates (academic impact) of public health dissemination and implementation research according to research design and study type. A cross sectional bibliographic study was undertaken in 2013. All original data-based studies and review articles focusing on dissemination and implementation research that had been published in 10 randomly selected public health journals in 2008 were audited. The electronic database ¿Scopus¿ was used to calculate 5-year citation rates for all included publications. Of the 1648 publications examined, 216 were original data-based research or literature reviews focusing on dissemination and implementation research. Of these 72% were classified as descriptive/epidemiological, 26% were intervention and just 1.9% were measurement research. Cross-sectional studies were the most common study design (47%). Reviews, randomized trials, non-randomized trials and decision/cost-effectiveness studies each represented between 6 and 10% of all output. Systematic reviews, randomized controlled trials and cohort studies were the most frequently cited study designs. The study suggests that publications that had the greatest academic impact (highest citation rates) made up only a small proportion of overall public health dissemination and implementation research output.
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Nova |
2016 |
Paul CL, Boyes AW, O'Brien L, Baker AL, Henskens FA, Roos I, et al., 'Protocol for a Randomized Controlled Trial of Proactive Web-Based Versus Telephone-Based Information and Support: Can Electronic Platforms Deliver Effective Care for Lung Cancer Patients?', JMIR RESEARCH PROTOCOLS, 5 (2016)
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2016 |
Paul C, Rose S, Hensley M, Pretto J, Hardy M, Henskens F, et al., 'Examining uptake of online education on obstructive sleep apnoea in general practitioners: A randomised trial', BMC Research Notes, 9 (2016) [C1]
Background: Obstructive sleep apnoea (OSA) affects up to 28 % of the adult population in Western countries. The detection and management of OSA by general practitioners (GPs) can ... [more]
Background: Obstructive sleep apnoea (OSA) affects up to 28 % of the adult population in Western countries. The detection and management of OSA by general practitioners (GPs) can be poor. The study aimed to examine what influence enhanced invitations had on uptake of on-line learning modules for OSA by GPs, and whether recent referrals of patients to sleep specialists influenced uptake. Methods: Practicing GPs in regional Australia were identified and randomised to receive either an enhanced or standard invitation letter to a new on-line education module for OSA. The enhanced letter included indication that the module was eligible for professional accreditation and described the prevalence and burden of sleep disorders. Some included extra emphasis if the GP had recently referred a patient for diagnostic investigation of OSA. Two reminder letters were sent. Results: Of 796 eligible GPs who received the letters, sixteen (2 %) accessed the website and four completed the modules over the four-month study period. GPs who received an enhanced invitation letter were not significantly more likely to access the website compared to GPs who received the standard invitation letter. Recent referral of a patient for diagnostic investigation was also not a significant factor in influencing use of the module. Conclusion: GP interest in on-line education about OSA appears low, and emphasis of relevant recent past patient(s) and the opportunity for professional education points was not successful in increasing engagement. There is a need to identify effective approaches to improving the detection and management of OSA in general practice.
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Nova |
2016 |
Yoong SL, Dodds P, Hure A, Clinton-Mcharg T, Skelton E, Wiggers J, Wolfenden L, 'Healthier options do not reduce total energy of parent intended fast food purchases for their young children: A randomised controlled trial', Nutrition and Dietetics, 73 146-152 (2016) [C1]
Aim: This study aimed to assess the impact of including healthier options on fast food restaurant menus on total energy of parent-reported intended purchases and frequency to eat ... [more]
Aim: This study aimed to assess the impact of including healthier options on fast food restaurant menus on total energy of parent-reported intended purchases and frequency to eat at fast food outlets for young children. Methods: Parents from an existing health survey cohort were approached to participate. They were eligible to participate if they resided in the Hunter region in NSW, could understand English and had a child aged between 3 and 12 years. Parents were randomised using a random number function embedded in the computer assisted telephone interview software, to receive one of two hypothetical fast food menus: one with healthier options and the other without healthier options (standard menu). After receiving these menus, participants completed a second telephone survey. Parents reported intended food purchases for their nominated child and intended number of visits to the fast food outlet with the hypothetical menu. Results: There was no significant difference in total energy of parent-reported intended purchases for their child, between the standard menu with (n = 101) and without (n = 113) healthier options (P = 0.60). There was also no difference in the frequency of intending to eat at the fast food restaurant between the two groups (P = 0.80). Conclusions: The provision of healthier options in itself may not reduce the total energy of intended purchases of parents for young children at fast food restaurants.
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Nova |
2016 |
Turon H, Waller A, Clinton-McHarg T, Boyes A, Fleming J, Marlton P, et al., 'The Perspectives of Haematological Cancer Patients on Tissue Banking', Oncology and Therapy, 4 91-102 (2016) [C1]
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Nova |
2016 |
Wolfenden L, Milat AJ, Lecathelinais C, Sanson-Fisher RW, Carey ML, Bryant J, et al., 'What is generated and what is used: A description of public health research output and citation', European Journal of Public Health, 26 523-525 (2016) [C1]
The aim of this short report was to describe the output and citation rates of public health. Data-based publications and literature reviews from the year 2008, and their 5-year ci... [more]
The aim of this short report was to describe the output and citation rates of public health. Data-based publications and literature reviews from the year 2008, and their 5-year citation rates were extracted from 10 randomly selected public health journals. In total, 86.2% of publications were descriptive/epidemiological studies, 56.8% used cross-sectional (56.8%) designs and 77.8% were classified as research translation stage 2. Reviews and publications describing randomized controlled trials were the most highly cited, but were infrequently published. Strategies to address the discordance between public health research output and research citation may improve the impact of public health research.
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Nova |
2016 |
Tindall J, Groombridge D, Wiggers J, Gillham K, Palmer D, Clinton-Mcharg T, et al., 'Alcohol-related crime in city entertainment precincts: Public perception and experience of alcohol-related crime and support for strategies to reduce such crime', Drug and Alcohol Review, 35 263-272 (2016) [C1]
Introduction and Aims: Bars, pubs and taverns in cities are often concentrated in entertainment precincts that are associated with higher rates of alcohol-related crime. This stud... [more]
Introduction and Aims: Bars, pubs and taverns in cities are often concentrated in entertainment precincts that are associated with higher rates of alcohol-related crime. This study assessed public perception and experiences of such crime in two city entertainment precincts, and support for alcohol-related crime reduction strategies. Design and Methods: A cross-sectional household telephone survey in two Australian regions assessed: perception and experiences of crime; support for crime reduction strategies; and differences in such perceptions and support. Results: Six hundred ninety-four people completed the survey (32%). Most agreed that alcohol was a problem in their entertainment precinct (90%) with violence the most common alcohol-related problem reported (97%). Almost all crime reduction strategies were supported by more than 50% of participants, including visitors to the entertainment precincts, with the latter being slightly less likely to support earlier closing and restrictions on premises density. Participants in one region were more likely to support earlier closing and lock-out times. Those at-risk of acute alcohol harm were less likely to support more restrictive policies. Discussion and Conclusions: High levels of community concern and support for alcohol harm-reduction strategies, including restrictive strategies, provide policy makers with a basis for implementing evidence-based strategies to reduce such harms in city entertainment precincts.
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Nova |
2015 |
Jones J, Wyse R, Finch M, Lecathelinais C, Wiggers J, Marshall J, et al., 'Effectiveness of an intervention to facilitate the implementation of healthy eating and physical activity policies and practices in childcare services: a randomised controlled trial', IMPLEMENTATION SCIENCE, 10 (2015) [C1]
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Nova |
2015 |
Boyes AW, Clinton-Mcharg T, Waller AE, Steele A, D'Este CA, Sanson-Fisher RW, 'Prevalence and correlates of the unmet supportive care needs of individuals diagnosed with a haematological malignancy', Acta Oncologica, 54 507-514 (2015) [C1]
Background. Information about the unmet supportive care needs of haematological cancer patients is needed for service planning and to inform clinical practice. This study describe... [more]
Background. Information about the unmet supportive care needs of haematological cancer patients is needed for service planning and to inform clinical practice. This study described the prevalence of, and factors associated with, unmet supportive care needs among haematological cancer patients. Material and methods. A total of 380 adults diagnosed with haematological cancer were recruited from the outpatient department at three comprehensive cancer treatment centres in Australia. Of these, 311 completed a self-report questionnaire. Unmet needs were assessed using the 34-item Supportive Care Needs Survey (SCNS-SF34). The data were examined using descriptive statistics and logistic regression. Results. Overall, 51% (95% CI 45-57%) of participants reported having at least one 'moderate to high' level unmet need, while 25% (95% CI 20-30%) reported 'no need' for help with any items. Unmet needs were most commonly reported in the psychological (35%; 95% CI 30-41%) and physical aspects of daily living (35%; 95% CI 30-41%) domains. The three most frequently endorsed items of 'moderate to high' unmet need were: lack of energy/tiredness (24%; 95% CI 20-30%), not being able to do the things you used to do (21%; 95% CI 17-26%), and uncertainty about the future (21%; 95% CI 16-25%). Patients' sociodemographic characteristics influenced unmet needs more than disease characteristics. Patients who were female, aged less than 55 years or not in the labour force had higher odds of reporting 'moderate to high' level unmet supportive care needs. Conclusion. Unmet supportive care needs are prevalent among haematological cancer patients, particularly in the psychological and physical aspects of daily living domains. These findings provide valuable insight about the range of resources, multidisciplinary linkages and referral pathways needed to address haematological cancer patients' unmet needs.
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Nova |
2015 |
Tzelepis F, Sanson-Fisher RW, Hall AE, Carey ML, Paul CL, Clinton-Mcharg T, 'Development and psychometric evaluation of the Quality of Patient-Centered Cancer Care measure with hematological cancer survivors', Cancer, 121 2383-2392 (2015) [C1]
BACKGROUND The Institute of Medicine (IOM) recommended 6 objectives for achieving patient-centered care. However, most patient-reported outcome measures developed with cancer popu... [more]
BACKGROUND The Institute of Medicine (IOM) recommended 6 objectives for achieving patient-centered care. However, most patient-reported outcome measures developed with cancer populations fail to address all 6 patient-centeredness dimensions. The Quality of Patient-Centered Cancer Care (QPCCC) measure was developed on the basis of IOM recommendations, and the measure's validity, reliability, and floor and ceiling effects were examined. METHODS The development of the QPCCC measure included interviews with hematological cancer survivors and feedback from hematologists and cancer patients. To evaluate the measure's psychometric properties, hematological cancer survivors were identified via 2 cancer registries and were mailed the QPCCC measure. To examine test-retest reliability, a second QPCCC measure was mailed to survivors 7 to 14 days after they had returned the first measure. RESULTS Overall, 545 hematological cancer survivors completed the 48-item QPCCC measure. Exploratory factor analysis revealed a 10-factor structure with factor loadings>0.40. The subscales were labeled Treatment Delivery, Treatment Decision Making, Coordinated and Integrated Care, Emotional Support, Timely Care, Follow-Up Care, Respectful Communication, Patient Preferences and Values, Cancer Information, and Equitable Care. The QPCCC measure demonstrated acceptable internal consistency for all subscales (Cronbach's a=.73-.94). When test-retest reliability was assessed, 4 items demonstrated substantial agreement (¿>0.60), whereas 40 items showed moderate agreement (¿=0.41-0.60). Ceiling effects were present for 8 subscales. CONCLUSIONS The QPCCC measure has acceptable face and content validity, construct validity, and internal consistency. However, the measure's discriminant validity and test-retest reliability could be improved. The QPCCC measure could be used to improve patient-centered cancer care. Cancer 2015;121:2383-2392.
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Nova |
2015 |
Yoong SL, Clinton-Mcharg T, Wolfenden L, 'Systematic reviews examining implementation of research into practice and impact on population health are needed', Journal of Clinical Epidemiology, 68 788-791 (2015) [C1]
Objectives To examine the research translation phase focus (T1-T4) of systematic reviews published in the Cochrane Database of Systematic Reviews (CDSR) and Database of Abstracts ... [more]
Objectives To examine the research translation phase focus (T1-T4) of systematic reviews published in the Cochrane Database of Systematic Reviews (CDSR) and Database of Abstracts of Reviews of Effects (DARE). Briefly, T1 includes reviews of basic science experiments; T2 includes reviews of human trials leading to guideline development; T3 includes reviews examining how to move guidelines into policy and practice; and T4 includes reviews describing the impact of changing health practices on population outcomes. Study Design and Setting A cross-sectional audit of randomly selected reviews from CDSR (n = 500) and DARE (n = 500) was undertaken. The research translation phase of reviews, overall and by communicable disease, noncommunicable disease, and injury subgroups, were coded by two researchers. Results A total of 898 reviews examined a communicable, noncommunicable, or injury-related condition. Of those, 98% of reviews within CDSR focused on T2, and the remaining 2% focused on T3. In DARE, 88% focused on T2, 8.7% focused on T1, 2.5% focused on T3, and 1.3% focused on T4. Almost all reviews examining communicable (CDSR 100%, DARE 93%), noncommunicable (CDSR 98%, DARE 87%), and injury (CDSR 95%, DARE 88%) were also T2 focused. Conclusion Few reviews exist to guide practitioners and policy makers with implementing evidence-based treatments or programs.
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Nova |
2015 |
Tzelepis F, Sanson-Fisher RW, Hall AE, Carey ML, Paul CL, Clinton-Mcharg T, 'The quality of patient-centred care: Haematological cancer survivors' perceptions', Psycho-Oncology, 24 796-803 (2015) [C1]
Objective Patient-reported outcome measures (PROMs) that assess the quality of patient-centred cancer care have failed to measure all six patient-centredness dimensions endorsed b... [more]
Objective Patient-reported outcome measures (PROMs) that assess the quality of patient-centred cancer care have failed to measure all six patient-centredness dimensions endorsed by the Institute of Medicine (IOM). This study is the first to use the Quality of Patient-Centered Cancer Care (QPCCC) measure that covers all six IOM patient-centredness dimensions to examine haematological cancer survivors' perceptions of care and characteristics associated with perceived quality of care. Methods Haematological cancer survivors diagnosed in the last 6 years and aged 18-80 years were recruited from two Australian state population-based cancer registries. Survivors were mailed the 48-item QPCCC measure. Results Overall, 545 haematological cancer survivors completed the measure. Areas of care most commonly identified as delivered were hospital staff showing respect to survivors (93%) and making sure the correct treatment was received (93%). Aspects of care most frequently nominated as not delivered were hospital staff helping family and friends (34%) or the survivor (32%) to find other people with similar experiences to talk to. Characteristics associated with survivors perceiving higher quality care was delivered included being employed, having private health insurance, being younger, a Non-Hodgkin lymphoma diagnosis and more recent diagnosis. Being depressed or stressed was associated with perceived lower quality of care. Conclusions Provision of peer support programs that allow haematological cancer survivors and families and friends to talk to others in similar situations could be improved. Using PROMs to identify areas where cancer survivors perceive improvements are needed is essential to quality improvement efforts.
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Nova |
2015 |
Lynagh MC, Clinton-McHarg T, Hall A, Sanson-Fisher R, Stevenson W, Tiley C, Bisquera A, 'Are Australian clinicians monitoring medication adherence in hematological cancer survivors? Two cross-sectional studies.', Experimental Hematology & Oncology, 4 1-8 (2015) [C1]
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Nova |
2014 |
Yoong SLI, Wolfenden L, Clinton-McHarg T, Waters E, Pettman TL, Steele E, Wiggers J, 'Exploring the pragmatic and explanatory study design on outcomes of systematic reviews of public health interventions: a case study on obesity prevention trials', Journal of public health (Oxford, England), 36 170-176 (2014) [C3]
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Nova |
2014 |
Clinton-McHarg T, Paul C, Boyes A, Rose S, Vallentine P, O'Brien L, 'Do cancer helplines deliver benefits to people affected by cancer? A systematic review', Patient Education and Counseling, 97 302-309 (2014) [C1]
Objectives: To determine the: (1) proportion of studies that describe characteristics of helpline service delivery, compared to the proportion that report trials testing efficacy ... [more]
Objectives: To determine the: (1) proportion of studies that describe characteristics of helpline service delivery, compared to the proportion that report trials testing efficacy or effectiveness of helplines in changing user outcomes; (2) proportion of efficacy or effectiveness studies that meet EPOC criteria for methodological rigor; and (3) potential benefits of cancer helplines for people affected by cancer based on findings from rigorous efficacy or effectiveness trials. Methods: Electronic databases (Medline, PsycINFO, EMBASE and CINAHL) were searched to identify English-language studies describing original research published from 1991 to 2011. Results: Twenty-eight publications met the review inclusion criteria. From these studies, data on: the characteristics of cancer helpline users; call content; and user satisfaction, were extracted. The potential for helplines to improve the psychosocial outcomes of callers was examined for the three intervention trials. Conclusion: There is a lack of robust evidence regarding the level and types of benefits that cancer helplines may deliver to callers affected by cancer. Given increased emphasis on delivering best-practise supportive care, building the evidence base in this field may assist cancer helplines to increase their service uptake, reach, and benefit to callers. Practise implications: There is a need for more rigorous intervention-focussed studies in this field across a broader range of cancer populations. Future studies should focus on relevant patient-centred outcomes, such as improved knowledge and greater involvement in decision-making, while incorporating process measures to account for intervention fidelity and clinical performance.
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Nova |
2014 |
Clinton-Mcharg T, Carey M, Sanson-Fisher R, Tzelepis F, Bryant J, Williamson A, 'Anxiety and depression among haematological cancer patients attending treatment centres: Prevalence and predictors', Journal of Affective Disorders, 165 176-181 (2014) [C1]
Background This study aimed to: (1) estimate the prevalence of anxiety and/or depression among haematological cancer patients attending treatment centres; and (2) explore the demo... [more]
Background This study aimed to: (1) estimate the prevalence of anxiety and/or depression among haematological cancer patients attending treatment centres; and (2) explore the demographic, disease and treatment characteristics associated with anxiety and/or depression. Methods A cross-sectional study was conducted with outpatients from three haematology clinics in Australia. Patients with a confirmed diagnosis of haematological cancer were approached by a research assistant while waiting for their appointment and invited to participate in the survey. Participants completed the Hospital Anxiety and Depression Scale (HADS) and self-reported demographic, disease and treatment characteristics. Results Questionnaires from 304 participants were returned. Twenty-seven percent of patients reported anxiety and 17% reported depression. Specifically, 15% reported anxiety without depression, 5% reported depression without anxiety, and 12% reported comorbid anxiety and depression. Participants who had to relocate to receive treatment had almost three times the odds of reporting anxiety and/or depression compared to those who did not have to move. Former smokers also had significantly higher odds of reporting anxiety and/or depression. Limitations The HADS is likely to have produced some false positives and false negatives when compared with gold standard structured clinical interviews for assessing psychological morbidity. Conclusions Approximately 20% of haematological cancer patients attending outpatient clinics may experience clinically significant levels of anxiety and/or depression. Providing additional tailored support to patients who have had to relocate for treatment, and to former smokers, may help to reduce anxiety and depression among these subgroups. © 2014 Published by Elsevier B.V.
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Nova |
2014 |
Tzelepis F, Rose SK, Sanson-Fisher RW, Clinton-McHarg T, Carey ML, Paul CL, 'Are we missing the Institute of Medicine's mark? A systematic review of patient-reported outcome measures assessing quality of patient-centred cancer care', BMC Cancer, 14 (2014) [C1]
Background: The Institute of Medicine (IOM) has endorsed six dimensions of patient-centredness as crucial to providing quality healthcare. These dimensions outline that care must ... [more]
Background: The Institute of Medicine (IOM) has endorsed six dimensions of patient-centredness as crucial to providing quality healthcare. These dimensions outline that care must be: 1) respectful to patients' values, preferences, and expressed needs; 2) coordinated and integrated; 3) provide information, communication, and education; 4) ensure physical comfort; 5) provide emotional support-relieving fear and anxiety; and 6) involve family and friends. However, whether patient-reported outcome measures (PROMs) comprehensively cover these dimensions remains unexplored. This systematic review examined whether PROMs designed to assess the quality of patient-centred cancer care addressed all six IOM dimensions of patient-centred care and the psychometric properties of these measures.Methods: Medline, PsycINFO, Current Contents, Embase, CINAHL and Scopus were searched to retrieve published studies describing the development and psychometric properties of PROMs assessing the quality of patient-centred cancer care. Two authors determined if eligible PROMs included the six IOM dimensions of patient-centred care and evaluated the adequacy of psychometric properties based on recommended criteria for internal consistency, test-retest reliability, face/content validity, construct validity and cross-cultural adaptation.Results: Across all 21 PROMs, the most commonly included IOM dimension of patient-centred care was " information, communication and education" (19 measures). In contrast, only five measures assessed the " involvement of family and friends." Two measures included one IOM-endorsed patient-centred care dimension, two measures had two dimensions, seven measures had three dimensions, five measures had four dimensions, and four measures had five dimensions. One measure, the Indicators (Non-small Cell Lung Cancer), covered all six IOM dimensions of patient-centred care, but had adequate face/content validity only. Eighteen measures met the recommended adequacy criteria for construct validity, 15 for face/content validity, seven for internal consistency, three for cross-cultural adaptation and no measure for test-retest reliability.Conclusions: There are no psychometrically rigorous PROMs developed with cancer patients that capture all six IOM dimensions of patient-centred care. Using more than one measure or expanding existing measures to cover all six patient-centred care dimensions could improve assessment and delivery of patient-centred care. Construction of new comprehensive measures with acceptable psychometric properties that can be used with the general cancer population may also be warranted. © 2014 Tzelepis et al.; licensee BioMed Central Ltd.
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2013 |
Paul CL, Hall AE, Carey ML, Cameron EC, Clinton-McHarg T, 'Access to Care and Impacts of Cancer on Daily Life: Do They Differ for Metropolitan Versus Regional Hematological Cancer Survivors?', Journal of Rural Health, 29 (2013) [C1]
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Nova |
2012 |
Carey ML, Clinton-Mcharg TL, Sanson-Fisher RW, Shakeshaft A, 'Development of cancer needs questionnaire for parents and carers of adolescents and young adults with cancer', Supportive Care in Cancer, 20 991-1010 (2012) [C1]
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Nova |
2012 |
Carey ML, Lambert SD, Smits RE, Paul CL, Sanson-Fisher RW, Clinton-Mcharg TL, 'The unfulfilled promise: A systematic review of interventions to reduce the unmet supportive care needs of cancer patients', Supportive Care in Cancer, 20 207-219 (2012) [C1]
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Nova |
2012 |
Paul CL, Clinton-Mcharg TL, Lynagh MC, Sanson-Fisher RW, Tzelepis F, 'On-line information and support for supporters and carers of haematological cancer patients: Is access an issue?', Supportive Care in Cancer, 20 2687-2695 (2012) [C1]
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Nova |
2012 |
Paul CL, Carey ML, Anderson AE, Mackenzie LJ, Sanson-Fisher RW, Courtney RJ, Clinton-Mcharg TL, 'Cancer patients' concerns regarding access to cancer care: Perceived impact of waiting times along the diagnosis and treatment journey', European Journal of Cancer Care, 21 321-329 (2012) [C1]
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Nova |
2012 |
Clinton-Mcharg TL, Carey ML, Sanson-Fisher RW, D'Este CA, Shakeshaft A, 'Preliminary development and psychometric evaluation of an unmet needs measure for adolescents and young adults with cancer: The Cancer Needs Questionnaire - Young People (CNQ-YP)', Health and Quality of Life Outcomes, 10 (2012) [C1]
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Nova |
2011 |
Clinton-Mcharg TL, Carey ML, Sanson-Fisher RW, Tracey E, 'Recruitment of representative samples for low incidence cancer populations: Do registries deliver?', BMC Medical Research Methodology, 11 1-9 (2011) [C1]
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Nova |
2011 |
Paul CL, Sanson-Fisher RW, Douglas HE, Clinton-Mcharg TL, Williamson A, Barker DJ, 'Cutting the research pie: A value-weighting approach to explore perceptions about psychosocial research priorities for adults with haematological cancers', European Journal of Cancer Care, 20 345-353 (2011) [C1]
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Nova |
2011 |
Carey ML, Clinton-Mcharg TL, Sanson-Fisher RW, Campbell S, Douglas HE, 'Patient or treatment centre? Where are efforts invested to improve cancer patients' psychosocial outcomes?', European Journal of Cancer Care, 20 152-162 (2011) [C1]
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Nova |
2010 |
Clinton-Mcharg TL, Carey ML, Sanson-Fisher RW, Shakeshaft A, Rainbird KJ, 'Measuring the psychosocial health of adolescent and young adult (AYA) cancer survivors: A critical review', Health and Quality of Life Outcomes, 8 1-13 (2010) [C1]
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Nova |
2010 |
Clinton-Mcharg TL, Paul CL, Sanson-Fisher RW, D'Este CA, Williamson A, 'Determining research priorities for young people with haematological cancer: A value-weighting approach', European Journal of Cancer, 46 3263-3270 (2010) [C1]
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|
Nova |
2009 |
Paul CL, Clinton-Mcharg TL, Sanson-Fisher RW, Douglas HE, Webb G, 'Are we there yet? The state of the evidence base for guidelines on breaking bad news to cancer patients', European Journal of Cancer, 45 2960-2966 (2009) [C1]
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|
Nova |