|2015||Paul CL, Carey ML, Russell G, D'Este C, Sanson-Fisher RW, Zwar N, 'Prevalence of FOB testing in eastern-Australian general practice patients: What has a national bowel cancer screening program delivered?', Health Promotion Journal of Australia, 26 39-44 (2015)|
Issues addressed The National Bowel Cancer Screening Program (NBCSP) was introduced in Australia in 2006, offering free immunochemical Faecal Occult Blood Test (FOBT) to persons aged 50, 55 or 65. The study aimed to examine the prevalence of self-reported screening for colorectal cancer (CRC) using the FOBT and factors associated with not having an FOBT. Methods A cross-sectional study of Australian general practice patients aged 50 and over with no personal history of CRC completed a health risk survey while waiting for scheduled appointments between November 2010 and November 2011. Results A total of 5671 patients from 12 practices were approached to participate. Of the 4707 eligible patients (adults attending for care who understood English and were capable of providing informed consent), 4062 (86%) consented to participate, with 2269 eligible to complete the FOBT items. Approximately half (52%) of participants reported ever having an FOBT. More than one-third (39.7%) of the sample reported having an FOBT in the prior three years. Those who recalled receiving a mailed kit as part of the NBCSP were five times more likely to report being screened. Those less likely to report screening were aged 50-59 years, were female and had been diagnosed with a form of cancer other than CRC. Conclusions There is justification for the extension of the NBCSP to ensure a majority of the age-appropriate population is screened for CRC. So what? Further work is needed to identify whether high rates of screening are achievable using the mailed-kit approach, and how to increase participation by females, those aged 50-69 years and those diagnosed with other cancers.
|2015||Noble N, Paul C, Conigrave K, Lee K, Blunden S, Turon H, et al., 'Does a retrospective seven-day alcohol diary reflect usual alcohol intake for a predominantly disadvantaged Australian Aboriginal population?', Subst Use Misuse, 50 308-319 (2015) [C1]|
|2015||Noble N, Paul C, Conigrave K, Lee K, Blunden S, Turon H, et al., 'Does a Retrospective Seven-day Alcohol Diary Reflect Usual Alcohol Intake for a Predominantly Disadvantaged Australian Aboriginal Population?', SUBSTANCE USE & MISUSE, 50 308-319 (2015) [C1]|
|2015||Bryant J, Sanson-Fisher R, Stevenson W, Smits R, Henskens F, Wei A, et al., 'Protocol of a multi-centre randomised controlled trial of a web-based information intervention with nurse-delivered telephone support for haematological cancer patients and their support persons.', BMC Cancer, 15 295 (2015)|
|2015||Bryant J, Carey M, Sanson-Fisher R, Mansfield E, Regan T, Bisquera A, 'Missed opportunities: General practitioner identification of their patients' smoking status', BMC Family Practice, 16 (2015)|
Background: In order to provide smoking cessation support to their patients in line with clinical practice guidelines, general practitioners must first ascertain whether their patients' use tobacco. This study examined (i) the sensitivity, specificity, positive predictive value and negative predictive value of general practitioner detection of smoking, and (ii) the general practitioner and patient characteristics associated with detection of tobacco use. Methods: Eligible patients completed a touchscreen computer survey while waiting for an appointment with their general practitioner. Patients self-reported demographic characteristics, medical history, and current smoking status. Following the patient's consultation, their general practitioner was asked to indicate whether the patient was a current smoker (yes/no/unsure/not applicable). Smoking prevalence, sensitivity, specificity, positive predictive value and negative predictive values (with 95% confidence intervals) were calculated using patient self-report of smoking status as the gold standard. Generalised estimating equations were used to examine the general practitioner and patient characteristics associated with detection of tobacco use. Results: Fifty-one general practitioners and 1,573 patients in twelve general practices participated. Patient self-report of smoking was 11.3% compared to general practitioner estimated prevalence of 9.5%. Sensitivity of general practitioner assessment was 66% [95% CI 59-73] while specificity was 98% [95% CI 97-98]. Positive predictive value was 78% [95% CI 71-85] and negative predictive value was 96% [95% CI 95-97]. No general practitioner factors were associated with detection of smoking. Patients with a higher level of education or who responded 'Other ' were less likely to be detected as smokers than patients who had completed a high school or below level of education. Conclusion: Despite the important role general practitioners play in providing smoking cessation advice and support, a substantial proportion of general practitioners do not know their patient's smoking status. This represents a significant missed opportunity in the provision of preventive healthcare. Electronic waiting room assessments may assist general practitioners in improving the identification of smokers.
|2015||Carey M, Noble N, Mansfield E, Waller A, Henskens F, Sanson-Fisher R, 'The Role of eHealth in Optimizing Preventive Care in the Primary Care Setting.', J Med Internet Res, 17 e126 (2015)|
|2015||Zucca A, Sanson-Fisher R, Waller A, Carey M, Fradgley E, Regan T, 'Medical Oncology Patients: Are They Offered Help and Does It Provide Relief?', J Pain Symptom Manage, (2015)|
|2015||Waller A, Forshaw K, Bryant J, Carey M, Boyes A, Sanson-Fisher R, 'Preparatory education for cancer patients undergoing surgery: A systematic review of volume and quality of research output over time.', Patient Educ Couns, (2015)|
|2015||Waller A, Carey M, Mazza D, Yoong S, Grady A, Sanson-Fisher R, 'Patient-reported areas for quality improvement in general practice: a cross-sectional survey.', Br J Gen Pract, 65 e312-e318 (2015)|
|2015||Carey M, Yoong SL, Grady A, Bryant J, Jayakody A, Sanson-Fisher R, Inder KJ, 'Unassisted detection of depression by GPs: who is most likely to be misclassified?', Fam Pract, 32 282-287 (2015)|
|2015||Grady A, Carey M, Oldmeadow C, Bryant J, Mazza D, Sanson-Fisher R, 'GP detection of health risk factors among general practice patients at risk of primary and secondary stroke.', Fam Pract, 32 336-342 (2015)|
|2015||Grady AM, Bryant J, Carey ML, Paul CL, Sanson-Fisher RW, Levi CR, 'Agreement with evidence for tissue Plasminogen Activator use among emergency physicians: a cross-sectional survey.', BMC Res Notes, 8 267 (2015)|
|2015||Mackenzie LJ, Carey M, Sanson-Fisher R, D'Este C, Yoong SL, 'A cross-sectional study of radiation oncology outpatients' concern about, preferences for, and perceived barriers to discussing anxiety and depression.', Psychooncology, (2015)|
|2014||Paul C, Yoong SL, Sanson-Fisher R, Carey M, Russell G, Makeham M, 'Under the radar: A cross-sectional study of the challenge of identifying at-risk alcohol consumption in the general practice setting', BMC Family Practice, 15 (2014) [C1]|
Background: Primary care providers are an important source of information regarding appropriate alcohol consumption. As early presentation to a provider for alcohol-related concerns is unlikely, it is important that providers are able to identify at-risk patients in order to provide appropriate advice. This study aimed to report the sensitivity, specificity, positive predictive value and negative predictive value of General Practitioner (GP) assessment of alcohol consumption compared to patient self-report, and explore characteristics associated with GP non-detection of at-risk status. Method. GP practices were selected from metropolitan and regional locations in Australia. Eligible patients were adults presenting for general practice care who were able to understand English and provide informed consent. Patients completed a modified AUDIT-C by touchscreen computer as part of an omnibus health survey while waiting for their appointment. GPs completed a checklist for each patient, including whether the patient met current Australian guidelines for at-risk alcohol consumption. Patient self-report and GP assessments were compared for each patient. Results: GPs completed the checklist for 1720 patients, yielding 1565 comparisons regarding alcohol consumption. The sensitivity of GPs' detection of at-risk alcohol consumption was 26.5%, with specificity of 96.1%. Higher patient education was associated with GP non-detection of at-risk status. Conclusions: GP awareness of which patients might benefit from advice regarding at-risk alcohol consumption appears low. Given the complexities associated with establishing whether alcohol consumption is 'at-risk', computer-based approaches to routine screening of patients are worthy of exploration as a method for prompting the provision of advice in primary care. Â© 2014 Paul et al.; licensee BioMed Central Ltd.
|2014||Grady A, Bryant J, Carey M, Paul C, Sanson-Fisher R, 'Enablers of the implementation of tissue plasminogen activator in acute stroke care: A cross-sectional survey', PLoS ONE, 9 (2014) [C1]|
|2014||Sanson-Fisher RW, D'Este CA, Carey ML, Noble N, Paul CL, 'Evaluation of Systems-Oriented Public Health Interventions: Alternative Research Designs', ANNUAL REVIEW OF PUBLIC HEALTH, VOL 35, 35 9-27 (2014) [C1]|
|2014||Sanson-Fisher RW, D'Este CA, Carey ML, Noble N, Paul CL, 'Evaluation of Systems-Oriented Public Health Interventions: Alternative Research Designs', ANNUAL REVIEW OF PUBLIC HEALTH, VOL 35, 35 9-27 (2014) [C1]|
|2014||Clinton-Mcharg T, Carey M, Sanson-Fisher R, Tzelepis F, Bryant J, Williamson A, 'Anxiety and depression among haematological cancer patients attending treatment centres: Prevalence and predictors', Journal of Affective Disorders, 165 176-181 (2014) [C1]|
Background This study aimed to: (1) estimate the prevalence of anxiety and/or depression among haematological cancer patients attending treatment centres; and (2) explore the demographic, disease and treatment characteristics associated with anxiety and/or depression. Methods A cross-sectional study was conducted with outpatients from three haematology clinics in Australia. Patients with a confirmed diagnosis of haematological cancer were approached by a research assistant while waiting for their appointment and invited to participate in the survey. Participants completed the Hospital Anxiety and Depression Scale (HADS) and self-reported demographic, disease and treatment characteristics. Results Questionnaires from 304 participants were returned. Twenty-seven percent of patients reported anxiety and 17% reported depression. Specifically, 15% reported anxiety without depression, 5% reported depression without anxiety, and 12% reported comorbid anxiety and depression. Participants who had to relocate to receive treatment had almost three times the odds of reporting anxiety and/or depression compared to those who did not have to move. Former smokers also had significantly higher odds of reporting anxiety and/or depression. Limitations The HADS is likely to have produced some false positives and false negatives when compared with gold standard structured clinical interviews for assessing psychological morbidity. Conclusions Approximately 20% of haematological cancer patients attending outpatient clinics may experience clinically significant levels of anxiety and/or depression. Providing additional tailored support to patients who have had to relocate for treatment, and to former smokers, may help to reduce anxiety and depression among these subgroups. Â© 2014 Published by Elsevier B.V.
|2014||Cameron E, Rose S, Carey M, 'Assessment of family history of colorectal cancer in primary care: Perceptions of first degree relatives of people with colorectal cancer', Patient Education and Counseling, 94 427-431 (2014) [C1]|
Objective: First degree relatives (FDRs) of someone with colorectal cancer (CRC) are at increased risk of the disease. In this study we examine the factors associated with discussing family history of CRC with a health professional. Methods: People with CRC, recruited through the population-based Victorian Cancer Registry in Australia, were asked to refer FDRs to the study. Eight hundred and nineteen FDRs completed a telephone interview. Results: Thirty-six percent of FDRs recalled ever being asked about their family history of bowel cancer by a health professional. Factors associated with having this discussion were being aged 50-60 years, having a university education, being in the potentially high risk category, being very worried about getting bowel cancer and knowing that family history increases risk through discussions with family, friends or their own education. Conclusion: Despite evidence that doctor endorsement is a key factor in the uptake of CRC screening, our study shows that the majority of FDRs do not recall being asked by a health professional about their family history. Practice implications: There is a need to identify the most appropriate method to improve rates of health professional discussion of family history with relatives of CRC patients in order to improve screening rates. Â© 2013 The Authors.
|2014||Grady A, Carey M, Sanson-Fisher R, 'Assessing awareness of appropriate responses to symptoms of stroke', Patient Education and Counseling, 95 400-405 (2014) [C1]|
Objective: The study explored (1) the level of awareness, and associates of greater awareness, of the appropriate action to take in response to stroke symptoms; and (2) actions taken in response to potential stroke symptoms, among general practice patients. Methods: Patients attending general practice clinics in New South Wales, Australia completed a paper and pencil survey. Results: 308 participants returned the survey. 76% indicated they would call an ambulance within 10. min for 'difficulty speaking or understanding others, with blurred vision (in one eye), and face, arm or leg weakness or numbness (on one side of the body)'. Having a first degree relative with a history of stroke was significantly associated with greater awareness of the appropriate action to take in response to stroke symptoms. Of those reporting they had experienced 'dizziness, loss of balance or an unexplained fall' 80% did not call an ambulance at the time of experiencing this symptom. Conclusion: There appears to be high awareness of the appropriate response to take for stroke symptoms among this sample, however this does not translate into actions when individuals experience a potential stroke symptom. Practice implications: Education campaigns should be targeted towards individuals without a family history of stroke. Â© 2014 Elsevier Ireland Ltd.
|2014||Yoong SL, Carey ML, Sanson-Fisher RW, D'Este CA, Mackenzie L, Boyes A, 'A cross-sectional study examining Australian general practitioners' identification of overweight and obese patients', Journal of General Internal Medicine, 29 328-334 (2014) [C1]|
BACKGROUND: Overweight and obese patients attempt weight loss when advised to do so by their physicians; however, only a small proportion of these patients report receiving such advice. One reason may be that physicians do not identify their overweight and obese patients. OBJECTIVES: We aimed to determine the extent that Australian general practitioners (GP) recognise overweight or obesity in their patients, and to explore patient and GP characteristics associated with non-detection of overweight and obesity. METHODS: Consenting adult patients (n = 1,111) reported weight, height, demographics and health conditions using a touchscreen computer. GPs (n = 51) completed hard-copy questionnaires indicating whether their patients were overweight or obese. We calculated the sensitivity, specificity, positive predictive value (PPV) and negative predictive value (NPV) for GP detection, using patient self-reported weight and height as the criterion measure for overweight and obesity. For a subsample of patients (n = 107), we did a sensitivity analysis with patient-measured weight and height. We conducted an adjusted, multivariable logistic regression to explore characteristics associated with non-detection, using random effects to adjust for correlation within GPs. RESULTS: Sensitivity for GP assessment was 63 % [95 % CI 57-69 %], specificity 89 % [95 % CI 85-92 %], PPV 87 % [95 % CI 83-90 %] and NPV 69 % [95 % CI 65-72 %]. Sensitivity increased by 3 % and specificity was unchanged in the sensitivity analysis. Men (OR: 1.7 [95 % CI 1.1-2.7]), patients without high blood pressure (OR: 1.8 [95 % CI 1.2-2.8]) and without type 2 diabetes (OR: 2.4 [95 % CI 1.2-8.0]) had higher odds of non-detection. Individuals with obesity (OR: 0.1 [95 % CI 0.07-0.2]) or diploma-level education (OR: 0.3 [95%CI 0.1-0.6]) had lower odds of not being identified. No GP characteristics were associated with non-detection of overweight or obesity. CONCLUSIONS: GPs missed identifying a substantial proportion of overweight and obese patients. Strategies to support GPs in identifying their overweight or obese patients need to be implemented. Â© 2013 Society of General Internal Medicine.
|2014||Zucca A, Sanson-Fisher R, Waller A, Carey M, 'Patient-centred care: Making cancer treatment centres accountable', Supportive Care in Cancer, 22 1989-1997 (2014) [C1]|
Patient-centred care is argued to be an essential component in the delivery of quality health and cancer care. This manuscript discusses the need to generate credible data which indicates the quality of patient-centred care provided by cancer treatment centres. Patient-centred care covers six domains including physical comfort; emotional support; respect for patients' preferences and values; integration and coordination; involvement of family and friends; and the provision of information, communication and education to enable patients to understand and make informed decisions about their care. First, we identify priority areas within each domain. Next, we propose three questions that should be asked of every patient across the six domains of patient-centred care. The first question explores whether patients were specifically asked by a healthcare provider at the cancer treatment centre about their concerns, values and preferences. Research indicates that it cannot be assumed that clinicians are aware of patient's needs or preferences in these six areas. Second, if the answer from the patient suggests that they would like assistance, then it would be expected that this would be offered. Thirdly, if the patient indicates that they would like such assistance and it is provided, then it might be expected that the patient would report that the provided assistance did relieve their suffering, or the assistance provided was consistent with their preferences, needs and values. Regular measurement and reporting of these aspects of patient-centred cancer care has the potential to identify deficits and inequities in care delivery, allow for comparisons across treatment centres and stimulate an improvement in the patient-centred care provided to cancer patients. Â© 2014 Springer-Verlag.
|2014||Carey M, Small H, Yoong SL, Boyes A, Bisquera A, Sanson-Fisher R, 'Prevalence of comorbid depression and obesity in general practice: A cross-sectional survey', British Journal of General Practice, 64 (2014) [C1]|
Background: General practice is a common setting for the provision of weight-management advice, as well as the treatment of depression. While there is some evidence of a reciprocal relationship between obesity and depression, there are limited data about the rates of depression among general practice patients who are underweight, normal weight, overweight, and obese. Aim: To explore the prevalence of depression among underweight, normal weight, overweight, and obese general practice patients. Design and setting: A cross-sectional survey was conducted in 12 Australian general practices. Method: Patients aged =18 years and older who were presenting for general practice care were eligible to participate. Consenting patients completed a touchscreen computer survey assessing self-reported weight and height. Depression was assessed by the Patient Health Questionnaire-9 (PHQ-9), with a score of =10 used to indicate possible depression. Results: Data were obtained from 3361 participants. The prevalence of depression was 24% (95% confidence interval [CI] = 11.86 to 39.28) among underweight participants, 11% (95% CI = 8.5 to 14.0) among normal weight participants, 12% (95% CI = 0.9 to 15.2) among overweight participants, and 23% (95% CI = 17.8 to 29.0) among obese participants. The prevalence of depression was higher for women than for men across all weight categories except underweight. Conclusion: Weight and depression demonstrated a U-shaped relationship, with higher prevalence of depression observed among underweight and obese general practice patients. These conditions may act as red flags for opportunistic screening of depression in the general practice setting. Â©British Journal of General Practice.
|2014||Campbell SH, Carey M, Sanson-Fisher R, Barker D, Turner D, Taylor-Brown J, Hall A, 'Measuring the unmet supportive care needs of cancer support persons: The development of the Support Person's Unmet Needs Survey - short form', European Journal of Cancer Care, 23 255-262 (2014) [C1]|
Few rigorous measures of unmet needs have been developed for cancer support persons. This study describes the development of a short version of the Support Person's Unmet Needs Survey (SPUNS). Cancer survivors [n = 1589, 612 (52%) men, mean age of 62.5 years, SD 11.5] 1-5 years post diagnosis and recruited through three Canadian population-based cancer registries were asked to pass a survey package on to their principal support person. Surveys were returned by 1183 support persons. The survey included the long form of the SPUNS, which contains 78 items. Fifty-two items were deleted using a combination of expert opinion and statistical criteria. Analysis of the remaining items revealed a five-factor structure. The original factors were retained with the exception of a merging of the personal and emotional needs subscales. Cronbach's alpha co-efficients for all subscales were =0.87, and intraclass correlation of domain scores of the short and long versions of the SPUNS were high. The SPUNS short form was able to discriminate between support persons of survivors who had (n = 147), and those who had not received treatment in the past month (n = 969). At just 26 items, it is likely to have strong clinical and research applicability. Â© 2013 John Wiley & Sons Ltd.
|2014||Grady A, Carey M, Bryant J, Sanson-Fisher R, 'Recruitment of healthcare specialists', EMA - Emergency Medicine Australasia, 26 516-517 (2014) [C3]|
|2014||Paul C, Courtney R, Sanson-Fisher R, Carey M, Hill D, Simmons J, Rose S, 'A randomized controlled trial of the effectiveness of a pre-recruitment primer letter to increase participation in a study of colorectal screening and surveillance', BMC MEDICAL RESEARCH METHODOLOGY, 14 (2014) [C1]|
|2014||Noble NE, Paul CL, Carey ML, Sanson-Fisher RW, Blunden SV, Stewart JM, Conigrave KM, 'A cross-sectional survey assessing the acceptability and feasibility of self-report electronic data collection about health risks from patients attending an Aboriginal Community Controlled Health Service', BMC MEDICAL INFORMATICS AND DECISION MAKING, 14 (2014) [C1]|
|2014||Grady A, Carey M, Bryant J, Sanson-Fisher R, 'Recruitment of healthcare specialists', EMERGENCY MEDICINE AUSTRALASIA, 26 516-517 (2014) [C3]|
|2014||Tzelepis F, Sanson-Fisher RW, Hall AE, Carey ML, Paul CL, Clinton-Mcharg T, 'The quality of patient-centred care: Haematological cancer survivors' perceptions', Psycho-Oncology, (2014)|
Objective: Patient-reported outcome measures (PROMs) that assess the quality of patient-centred cancer care have failed to measure all six patient-centredness dimensions endorsed by the Institute of Medicine (IOM). This study is the first to use the Quality of Patient-Centered Cancer Care (QPCCC) measure that covers all six IOM patient-centredness dimensions to examine haematological cancer survivors' perceptions of care and characteristics associated with perceived quality of care. Methods: Haematological cancer survivors diagnosed in the last 6 years and aged 18-80 years were recruited from two Australian state population-based cancer registries. Survivors were mailed the 48-item QPCCC measure. Results: Overall, 545 haematological cancer survivors completed the measure. Areas of care most commonly identified as delivered were hospital staff showing respect to survivors (93%) and making sure the correct treatment was received (93%). Aspects of care most frequently nominated as not delivered were hospital staff helping family and friends (34%) or the survivor (32%) to find other people with similar experiences to talk to. Characteristics associated with survivors perceiving higher quality care was delivered included being employed, having private health insurance, being younger, a Non-Hodgkin lymphoma diagnosis and more recent diagnosis. Being depressed or stressed was associated with perceived lower quality of care. Conclusions: Provision of peer support programs that allow haematological cancer survivors and families and friends to talk to others in similar situations could be improved. Using PROMs to identify areas where cancer survivors perceive improvements are needed is essential to quality improvement efforts.
|2014||Mackenzie LJ, Carey ML, Sanson-Fisher RW, D'Este CA, Paul CL, Yoong SL, 'Agreement between HADS classifications and single-item screening questions for anxiety and depression: a cross-sectional survey of cancer patients.', Ann Oncol, 25 889-895 (2014) [C1]|
|2014||Carey M, Jones K, Meadows G, Sanson-Fisher R, D'Este C, Inder K, et al., 'Accuracy of general practitioner unassisted detection of depression.', Aust N Z J Psychiatry, 48 571-578 (2014) [C1]|
|2014||Tzelepis F, Rose SK, Sanson-Fisher RW, Clinton-McHarg T, Carey ML, Paul CL, 'Are we missing the Institute of Medicine's mark? A systematic review of patient-reported outcome measures assessing quality of patient-centred cancer care', BMC Cancer, 14 (2014) [C1]|
Background: The Institute of Medicine (IOM) has endorsed six dimensions of patient-centredness as crucial to providing quality healthcare. These dimensions outline that care must be: 1) respectful to patients' values, preferences, and expressed needs; 2) coordinated and integrated; 3) provide information, communication, and education; 4) ensure physical comfort; 5) provide emotional support-relieving fear and anxiety; and 6) involve family and friends. However, whether patient-reported outcome measures (PROMs) comprehensively cover these dimensions remains unexplored. This systematic review examined whether PROMs designed to assess the quality of patient-centred cancer care addressed all six IOM dimensions of patient-centred care and the psychometric properties of these measures.Methods: Medline, PsycINFO, Current Contents, Embase, CINAHL and Scopus were searched to retrieve published studies describing the development and psychometric properties of PROMs assessing the quality of patient-centred cancer care. Two authors determined if eligible PROMs included the six IOM dimensions of patient-centred care and evaluated the adequacy of psychometric properties based on recommended criteria for internal consistency, test-retest reliability, face/content validity, construct validity and cross-cultural adaptation.Results: Across all 21 PROMs, the most commonly included IOM dimension of patient-centred care was " information, communication and education" (19 measures). In contrast, only five measures assessed the " involvement of family and friends." Two measures included one IOM-endorsed patient-centred care dimension, two measures had two dimensions, seven measures had three dimensions, five measures had four dimensions, and four measures had five dimensions. One measure, the Indicators (Non-small Cell Lung Cancer), covered all six IOM dimensions of patient-centred care, but had adequate face/content validity only. Eighteen measures met the recommended adequacy criteria for construct validity, 15 for face/content validity, seven for internal consistency, three for cross-cultural adaptation and no measure for test-retest reliability.Conclusions: There are no psychometrically rigorous PROMs developed with cancer patients that capture all six IOM dimensions of patient-centred care. Using more than one measure or expanding existing measures to cover all six patient-centred care dimensions could improve assessment and delivery of patient-centred care. Construction of new comprehensive measures with acceptable psychometric properties that can be used with the general cancer population may also be warranted. Â© 2014 Tzelepis et al.; licensee BioMed Central Ltd.
|2014||Carey M, Jones KA, Yoong SL, D'Este C, Boyes AW, Paul C, et al., 'Comparison of a single self-assessment item with the PHQ-9 for detecting depression in general practice.', Fam Pract, (2014) [C1]|
|2014||Bryant J, Boyes A, Jones K, Sanson-Fisher R, Carey M, Fry R, 'Examining and addressing evidence-practice gaps in cancer care: A systematic review', Implementation Science, 9 (2014) [C1]|
Background: There is increasing recognition of gaps between best scientific evidence and clinical practice. This systematic review aimed to assess the volume and scope of peer-reviewed cancer research output in the years 2000, 2005, and 2010.Methods: Eligible papers were published in English and reported on evidence-practice gaps in cancer care. The electronic database Medline was searched for three time periods using MeSH headings and keywords. Abstracts were assessed against eligibility criteria by one reviewer and checked by a second. Papers meeting eligibility criteria were coded as data-based or non-data-based, and by cancer type of focus. All data-based papers were then further classified as descriptive studies documenting the extent of, or barriers to addressing, the evidence-practice gap; or intervention studies examining the effectiveness of strategies to reduce the evidence-practice gap.Results: A total of 176 eligible papers were identified. The number of publications significantly increased over time, from 25 in 2000 to 100 in 2010 (p < 0.001). Of the 176 identified papers, 160 were data-based. The majority of these (n = 150) reported descriptive studies. Only 10 studies examined the effectiveness of interventions designed to reduce discrepancies between evidence and clinical practice. Of these, only one was a randomized controlled trial. Of all data-based studies, almost one-third (n = 48) examined breast cancer care.Conclusions: While the number of publications investigating evidence-practice gaps in cancer care increased over a ten-year period, most studies continued to describe gaps between best evidence and clinical practice, rather than rigorously testing interventions to reduce the gap. Â© 2014 Bryant et al.; licensee BioMed Central Ltd.
|2013||Boyes AW, Girgis A, D'Este CA, Zucca AC, Lecathelinais C, Carey ML, 'Prevalence and predictors of the short-term trajectory of anxiety and depression in the first year after a cancer diagnosis: a population-based longitudinal study.', J Clin Oncol, 31 2724-2729 (2013) [C1]|
|2013||Yoong SL, Carey M, Sanson-Fisher R, Grady A, 'A systematic review of behavioural weight-loss interventions involving primary-care physicians in overweight and obese primary-care patients (1999-2011).', Public Health Nutrition, 16 2083-2099 (2013) [C1]|
|2013||Paul CL, Carey ML, Sanson-Fisher RW, Houlcroft LE, Turon HE, 'The impact of web-based approaches on psychosocial health in chronic physical and mental health conditions', Health Education Research, 28 450-471 (2013) [C1]|
|2013||Yoong SL, Carey ML, Sanson-Fisher R, D'Este C, 'Recruitment in general practice', Australian Family Physician, 42 9-9 (2013) [C3]|
|2013||Paul CL, Hall AE, Carey ML, Cameron EC, Clinton-McHarg T, 'Access to Care and Impacts of Cancer on Daily Life: Do They Differ for Metropolitan Versus Regional Hematological Cancer Survivors?', Journal of Rural Health, 29 (2013) [C1]|
|2013||Mackenzie LJ, Carey ML, Sanson-Fisher RW, D'Este CA, 'Psychological distress in cancer patients undergoing radiation therapy treatment', SUPPORTIVE CARE IN CANCER, 21 1043-1051 (2013) [C1]|
|2013||Boyes AW, D'Este CA, Carey ML, Lecathelinais C, Girgis A, 'How does the Distress Thermometer compare to the Hospital Anxiety and Depression Scale for detecting possible cases of psychological morbidity among cancer survivors?', Supportive Care in Cancer, 21 119-127 (2013) [C1]|
|2013||Paul CL, Carey M, Yoong SL, D'Este C, Makeham M, Henskens F, 'Access to chronic disease care in general practice: The acceptability of implementing systematic waiting-room screening using computer-based patient-reported risk status', British Journal of General Practice, 63 (2013) [C1]|
|2013||Hall A, Campbell HS, Sanson-Fisher R, Lynagh M, D'Este C, Burkhalter R, Carey M, 'Unmet needs of Australian and Canadian haematological cancer survivors: a cross-sectional international comparative study', PSYCHO-ONCOLOGY, 22 2032-2038 (2013) [C1]|
|2013||MacKenzie LJ, Carey ML, Paul CL, Sanson-Fisher RW, D'Este CA, 'Do we get it right? Radiation oncology outpatients' perceptions of the patient centredness of life expectancy disclosure', Psycho-Oncology, 22 2720-2728 (2013) [C1]|
Objective A patient-centred approach to discussing life expectancy with cancer patients is recommended in Western countries. However, this approach to eliciting and meeting patient preferences can be challenging for clinicians. The aims of this study were the following: (i) to examine cancer patients' preferences for life expectancy disclosure; and (ii) to explore agreement between cancer patients' preferences for, and perceived experiences of, life expectancy disclosure. Methods Cancer patients undergoing radiotherapy treatment in metropolitan Australia completed a cross-sectional touchscreen computer survey including optional questions about their life expectancy disclosure preferences and experiences. Results Of the 208 respondents, 178 (86%) indicated that they would prefer their clinician to ask them before discussing life expectancy, and 30 (14%) indicated that they would prefer others (i.e. clinicians, family) to decide whether they were given life expectancy information. Of the 175 respondents who were classified as having a self- determined or other-determined disclosure experience, 105 (60%) reported an experience of life expectancy disclosure that was in accordance with their preferences. Cohen's Â¿ was -0.04 (95% CI, -0.17, 0.08), indicating very poor agreement between patients' preferences for and perceived experiences of life expectancy disclosure (p = 0.74). Conclusions In light of patient-centred prognosis disclosure guidelines, our findings of a majority preference for, and experience of, a self-determined approach to life expectancy disclosure amongst radiation oncology patients are encouraging. However, poor agreement between preferences and experiences highlights that additional effort from clinicians is required in order to achieve a truly patient-centred approach to life expectancy disclosure. Copyright Â© 2013 John Wiley & Sons, Ltd.
|2013||Schofield P, Ugalde A, Gough K, Reece J, Krishnasamy M, Carey M, et al., 'A tailored, supportive care intervention using systematic assessment designed for people with inoperable lung cancer: A randomised controlled trial', Psycho-Oncology, 22 2445-2453 (2013) [C1]|
|2013||Yoong SL, Carey M, Sanson-Fisher R, D'Este C, 'Prevalence and correlates of overweight and obesity in adult Australian general practice patients', AUSTRALIAN AND NEW ZEALAND JOURNAL OF PUBLIC HEALTH, 37 586-586 (2013) [C3]|
|2013||Paul C, Sanson-Fisher R, Carey M, 'Measuring psychosocial outcomes: is the consumer or the professional the best judge?', European Journal of Cancer Care, 22 281-288 (2013) [C1]|
|2013||Yoong SL, Carey ML, D'Este C, Sanson-Fisher RW, 'Agreement between self-reported and measured weight and height collected in general practice patients: a prospective study', BMC MEDICAL RESEARCH METHODOLOGY, 13 (2013) [C1]|
|2013||Carey M, Bryant J, Yoong SL, Russell G, Barker D, Sanson-Fisher R, 'Prostate specific antigen testing in family practice: a cross sectional survey of self-reported rates of and reasons for testing participation and risk disclosure', BMC FAMILY PRACTICE, 14 (2013) [C1]|
|2013||Yoong SL, Carey ML, Sanson-Fisher RW, D'Este CA, 'A cross-sectional study assessing Australian general practice patients' intention, reasons and preferences for assistance with losing weight', BMC FAMILY PRACTICE, 14 (2013) [C1]|
|2013||Courtney RJ, Paul CL, Carey ML, Sanson-Fisher RW, Macrae FA, D'Este C, et al., 'A population-based cross-sectional study of colorectal cancer screening practices of first-degree relatives of colorectal cancer patients', BMC CANCER, 13 (2013) [C1]|
|2013||Courtney RJ, Paul CL, Sanson-Fisher RW, Macrae FA, Carey ML, Attia J, McEvoy M, 'Individual- and provider-level factors associated with colorectal cancer screening in accordance with guideline recommendation: a community-level perspective across varying levels of risk', BMC PUBLIC HEALTH, 13 (2013) [C1]|
|2013||Paul CL, Piterman L, Shaw J, Kirby C, Sanson-Fisher RW, Carey ML, et al., 'Diabetes in rural towns: effectiveness of continuing education and feedback for healthcare providers in altering diabetes outcomes at a population level: protocol for a cluster randomised controlled trial', IMPLEMENTATION SCIENCE, 8 (2013) [C3]|
|2013||Mackenzie LJ, Sanson-Fisher RW, Carey ML, D'Este CA, 'Radiation oncology outpatient perceptions of patient-centred care: a cross-sectional survey', BMJ OPEN, 3 (2013) [C1]|
|2012||Courtney RJ, Paul CL, Sanson-Fisher RW, Macrae FA, Carey ML, Attia JR, McEvoy MA, 'Colorectal cancer screening in Australia: A community-level perspective', Medical Journal of Australia, 196 516-520 (2012) [C1]|
|2012||Courtney RJ, Paul CL, Sanson-Fisher RW, Carey ML, Macrae FA, Yoong SL, 'Community approaches to increasing colorectal screening uptake: A review of the methodological quality and strength of current evidence', Cancer Forum, 36 27-35 (2012) [C1]|
|2012||Carey ML, Anderson AE, Sanson-Fisher RW, Lynagh MC, Paul CL, Tzelepis F, 'How well are we meeting haematological cancer survivors' preferences for involvement in treatment decision making?', Patient Education and Counseling, 88 87-92 (2012) [C1]|
|2012||Carey ML, Clinton-Mcharg TL, Sanson-Fisher RW, Shakeshaft A, 'Development of cancer needs questionnaire for parents and carers of adolescents and young adults with cancer', Supportive Care in Cancer, 20 991-1010 (2012) [C1]|
|2012||Carey ML, Lambert SD, Smits RE, Paul CL, Sanson-Fisher RW, Clinton-Mcharg TL, 'The unfulfilled promise: A systematic review of interventions to reduce the unmet supportive care needs of cancer patients', Supportive Care in Cancer, 20 207-219 (2012) [C1]|
|2012||Mackenzie LJ, Carey ML, Sanson-Fisher RW, D'Este CA, Hall AE, 'Cancer patients' willingness to answer survey questions about life expectancy', Supportive Care in Cancer, 20 3335-3341 (2012) [C1]|
|2012||Carey ML, Paul CL, Mackenzie LJ, Sanson-Fisher RW, Cameron EC, 'Do cancer patients' psychosocial outcomes and perceptions of quality of care vary across radiation oncology treatment centres?', European Journal of Cancer Care, 21 384-389 (2012) [C1]|
|2012||Paul CL, Carey ML, Anderson AE, Mackenzie LJ, Sanson-Fisher RW, Courtney RJ, Clinton-Mcharg TL, 'Cancer patients' concerns regarding access to cancer care: Perceived impact of waiting times along the diagnosis and treatment journey', European Journal of Cancer Care, 21 321-329 (2012) [C1]|
|2012||Carey ML, Paul CL, Cameron EC, Lynagh MC, Hall AE, Tzelepis F, 'Financial and social impact of supporting a haematological cancer survivor', European Journal of Cancer Care, 21 169-176 (2012) [C1]|
|2012||Carey ML, Noble NE, Sanson-Fisher RW, Mackenzie LJ, 'Identifying psychological morbidity among people with cancer using the Hospital Anxiety and Depression Scale: Time to revisit first principles?', Psycho-Oncology, 21 229-238 (2012) [C1]|
|2012||Schofield P, Gough K, Ugalde A, Carey ML, Aranda S, Sanson-Fisher RW, 'Cancer Treatment Survey (CaTS): Development and validation of a new instrument to measure patients' preparation for chemotherapy and radiotherapy', Psycho-Oncology, 21 307-315 (2012) [C1]|
|2012||Courtney RJ, Paul CL, Sanson-Fisher RW, Macrae FA, Carey ML, Attia JR, McEvoy MA, 'Colorectal cancer risk assessment and screening recommendation: A community survey of healthcare providers' practice from a patient perspective', BMC Family Practice, 13 1-9 (2012) [C1]|
|2012||Yoong SL, Carey ML, Sanson-Fisher RW, D'Este CA, 'A cross-sectional study assessing the self-reported weight loss strategies used by adult Australian general practice patients', BMC Family Practice, 13 48 (2012) [C1]|
|2012||Carey ML, Sanson-Fisher RW, Macrae F, Hill D, D'Este CA, Paul CL, Doran CM, 'Improving adherence to surveillance and screening recommendations for people with colorectal cancer and their first degree relatives: a randomized controlled trial', BMC Cancer, 12 62 (2012) [C3]|
|2012||Clinton-Mcharg TL, Carey ML, Sanson-Fisher RW, D'Este CA, Shakeshaft A, 'Preliminary development and psychometric evaluation of an unmet needs measure for adolescents and young adults with cancer: The Cancer Needs Questionnaire - Young People (CNQ-YP)', Health and Quality of Life Outcomes, 10 1-11 (2012) [C1]|
|2012||Carey ML, Paul CL, Sanson-Fisher RW, Buchan H, 'Data systems for assessing quality of cancer care: Are building blocks in place for person-centered care?', The International Journal of Person Centred Medicine, 2 334-340 (2012) [C1]|
|2012||Yoong SL, Carey ML, Sanson-Fisher RW, Russell G, Mazza D, Makeham M, et al., 'Touch screen computer health assessment in Australian general practice patients: A cross-sectional study protocol', BMJ Open, 2 1-7 (2012) [C3]|
|2012||Lambert SD, Harrison JD, Smith E, Bonevski B, Carey ML, Lawsin C, et al., 'The unmet needs of partners and caregivers of adults diagnosed with cancer: A systematic review', BMJ Supportive & Palliative Care, 2 224-230 (2012) [C1]|
|2011||Clinton-Mcharg TL, Carey ML, Sanson-Fisher RW, Tracey E, 'Recruitment of representative samples for low incidence cancer populations: Do registries deliver?', BMC Medical Research Methodology, 11 1-9 (2011) [C1]|| |
|2011||Carey ML, Yoong SL, Sanson-Fisher RW, Paul CL, Inder KJ, Makeham M, 'Efforts to close the evidence-practice gap in the management of cardiovascular risk factors in general practice: Strategic or haphazard?', International Journal of Person Centered Medicine, 1 660-667 (2011) [C1]|| |
|2011||Carey ML, Clinton-Mcharg TL, Sanson-Fisher RW, Campbell S, Douglas HE, 'Patient or treatment centre? Where are efforts invested to improve cancer patients' psychosocial outcomes?', European Journal of Cancer Care, 20 152-162 (2011) [C1]|| |
|2011||Paul CL, Carey ML, Hall AE, Lynagh MC, Sanson-Fisher RW, Henskens FA, 'Improving access to information and support for patients with less common cancers: hematologic cancer patients' views about web-based approaches', Journal of Medical Internet Research, 13 e112 (2011) [C1]|| |
|2010||Clinton-Mcharg TL, Carey ML, Sanson-Fisher RW, Shakeshaft A, Rainbird KJ, 'Measuring the psychosocial health of adolescent and young adult (AYA) cancer survivors: A critical review', Health and Quality of Life Outcomes, 8 1-13 (2010) [C1]|| |
|2010||Carey M, Sanson-Fisher RW, Lotfi-Jam K, Schofield P, Aranda S, 'Multidisciplinary care in cancer: Do the current research outputs help?', European Journal of Cancer Care, 19 434-441 (2010) [C1]|| |
|2009||Sanson-Fisher RW, Carey M, Mackenzie LJ, Hill D, Campbell S, Turner D, 'Reducing inequities in cancer care: The role of cancer registries', Cancer, 115 3597-3605 (2009) [C1]|| |
|2009||Sanson-Fisher RW, Carey ML, Paul CL, 'Measuring the unmet needs of those with cancer: A critical overview', Cancer Forum, 33 198-201 (2009) [C1]|| |
|2009||Carey M, Buchan H, Sanson-Fisher RW, 'The cycle of change: Implementing best-evidence clinical practice', International Journal for Quality in Health Care, 21 37-43 (2009) [C1]|| |
|2006||Schofield P, Carey M, Bonevski B, Sanson-Fisher RW, 'Barriers to the provision of evidence-based psychosocial care in oncology', Psycho-Oncology, 15 863-872 (2006) [C1]|